Artifishual wrote:Cheer this some exciting news to say the least! I will be praying for you, Jeff and Dr. Drake. I cannot wait to hear first hand from someone who has had this done! I have a couple of small questions though. How did you find Dr. drake? and how did you approach him with this? thanks for any info. I am currently looking.
I had been in touch (thru e-mail) with a wonderful doc at Stanford, Dr. John Cooke, regarding his research on the endothelium. When Zamboni's paper came out, I sent it to him and asked for his advice. He referred us to his colleague, Dr. Dake. Dake then "coincidentally" saw Zamboni in London at a vascular symposium, met with him- and believed this was true. The timing seems to be God's providence, because it all happened so quickly.
That said, I believe we need to work hard, and be our own advocates. Look for vascular docs at local universities that specialize in "endovascular procedures" and "investigational radiology." Dr. Dake is a cardiac specialist, but he also is an innovator in endovascular procedures and stents for veins.
I approached the doctors with an informational e-mail and sent the link to Zamboni's research. Now that we have Jeff confirmed with bilateral jugular vein stenosis at Stanford, that info can be used as well, to build the case for CCSVI.
I'm more than willing to proof read or help you write a letter to docs. Send me a PM and we'll get you going. The more research we can compile, the better for everyone.