This Is MS Multiple Sclerosis Community: Knowledge & Support

Off to sleep. Got a nice call from Jeff in his room. He's sitting up and on his laptop. He said his head feels different, like it's not foggy anymore...hard to describe. He's still a bit stomach sick, but has an IV for liquids, and his right stent site is a bit sore (it was a tight vein). But he's ready for sleep and a new day. Thanks again, everyone, for all the good thoughts and prayers-
AC

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I hope that the head fog clears. Driving home from a work assignment yesterday that required a 3 hour drive, I realized that it will be nice to "look out at the world with my own eyes again". Does that make sense? You see even when my vision isn't all cloudy, it's like it's "closed in". I would imagine others that have felt this understand what I'm trying to say, I just can't verbalize it very well. It almost feels as if the images I'm taking in are on a millisecond delay with real time. Can't explain it, but that with the headaches and all the ON make me feel like there's definitely some backed up plumbing! I hope so anyway. Still haven't heard from my guy at Ohio State, so it's time to sic "the Nell" on them (my mom) and have her hound them all day with phone calls!

I can't wait to hear more from Jeff.

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

Once these stents are put in does it mean that Jeff can no longer have MRI's?? If so how will we know if the procedure is preventing further damage to the brain/spine etc?

Just a thought

I really hope this works!!! fingers crossed

L

Nice good morning e-mail. With the exception of a couple of vitals checks, Jeff had a good sleep. He feels much better today, and says that exhausted, cloudy feeling seems cleared. He's having his coffee and waiting to see Dr. Dake. Lew, have Nell mention Dr. Dake and the stent procedure. Have her turn on the charm:)

Jeff has "MRI safe" stents...not sure how that is determined, but since MRIs are part of his care, that was the way to go. I asked Dake about airport metal detectors and he said no problem. Jeff will need MRVs periodically, to check the stents/veins...but he said he's used to being "poked and prodded" as all you guys are. A really small price to pay-
AC

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

123

Hi Chris,
Ferrous metals are magnetic other metals are not. Titanium is not ferrous. Joint replacements are titanium so safe for MRI. Medical stuff is made from non ferrous metals.

Cheer, I am so glad Jeff feels better and I can't wait to hear more about that!

123

there is a lot of stuff I do not know anything about, but I shattered my shoulder joint in a fall last autumn and learned that from the orthopedic surgeon who followed me. I'm gald that hard won knowledge was useful once!

good morning all - It is good to hear Jeff is doing well and stayed the extra day. I booked my flight for an extra day just in case.

Cheer it must be hard for you not being w/hubby to comfort him control issues aside... But your little guy needs U too.

Cheer wrote:



I have he head fog too. My head feels thick...no jokes please

You know I am thinking about Jeff specifically as an MS patient and how fortunate it is that he is the first case for Dr Dake.

Look at the special stuff about it that Dr Dake got to learn iwth his first case:

The jugulars can be blocked so high up that dopplers are uselss and you can think there is nothing there when there is something huge there.

This man has very typical MS lesions, many of them.

The location of his vein senosis accounts for the anatomical presentation of his lesions and it is obvious that the lowest lesion is as low as the blocked vein--no lower. ergo, below that level, where the blood flows freely, no lesions.

If this was written up as a case study, even all by itself, it would encourage other doctors to at least admit that typical MS lesions can be associated with a venous blockage. No matter if you are trying to add an autoimmune component to it in some way, as many will for some time until this is proven, you would have to admit that it might be prudent to screen MS patients for this.

My guess is that vascular doctors would go for it big time because they understand the venous lesion/blockage association as it is basic to their practices from leg ulcers.

It might be good enough for an interim step

I can't wait to see how it feels to be free of that cotton ball head feeling myself!

marie you are too funny

Jeff (my bionic man) is heading to the airport and coming home!
Woot, woot!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

dig it

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

I haven't been able to check in here all day (I hate it when work gets in the way of real life.)
HAPPY HOMECOMING JEFF!!