Liberation Procedure/Stent placement

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Artifishual » Wed May 06, 2009 2:16 pm

cheerleader wrote:Jeff (my bionic man) is heading to the airport and coming home!
Woot, woot!
cheer


AWESOME!!!!! :D
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Postby cheerleader » Wed May 06, 2009 2:33 pm

We're on the sofa, enjoying an icy beverage (it's 95 deg. today) Jeff feels good, glad to be home. More as the days pass. Thanks again to everyone for keeping me sane....Jeff sends his thanks, too!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby mrhodes40 » Wed May 06, 2009 2:37 pm

Yeah Jeff!!

Cheer, I can't wait for your ongoing reports

Know what I bet? I bet that in just a short time he'll feel normal and not even remember how it "felt" to have MS.

When you get a chance and can report is the heat all good nowadays as it is for wobbly?

Lew said
look through my own eyes


I actually get that; one of my first symptoms that I compained of was that things did not seem "real" they seemed instead kind of less substantial than they should, as if they were somehow only partly visible even though I could see them: like looking at a TV screen where there is some "snow" on it breaking it up in a way so you can still see it but it is not all there to see. I don't think that it is describable really to persons who do not have it.
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Postby chrishasms » Wed May 06, 2009 2:58 pm

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Postby chrishasms » Wed May 06, 2009 3:00 pm

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Postby chrishasms » Wed May 06, 2009 3:47 pm

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Postby mrhodes40 » Wed May 06, 2009 4:05 pm

Chris I am glad you got in and will get treatment too Way to go! :D
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Postby chrishasms » Wed May 06, 2009 4:11 pm

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Postby mrhodes40 » Wed May 06, 2009 4:28 pm

It was wild hearing him say that the lesions could be edemas from the backflow

yeah it's wild to think that can be the cause of MS lesions. My mind still wants to have trouble with it--and it is true that the minute this is shown to help people with MS there will be a massive effort to look at autoimmunity as the cause of this instead of the other way around, but I can't see any way for that to end up being the true situation.

You know the edema from CVI has been causing lesions in ankles and feet because of blocked veins since forever--it's easy for someone like Dake whose job entails dealing with that on a regular basis to see this new connection, the location is different and because itis brain it is "special", but it is the same pathology.

Isn't it cool talking to him? I thought he was wonderful :D
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Postby Loobie » Wed May 06, 2009 4:28 pm

And Chris Young at that! :roll:
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Postby peekaboo » Wed May 06, 2009 4:44 pm

This is really cool...how many of us "thisisms'rs" are getting CCSVI treatment east and west coast usa/canada? (even abroad) I was thinking that we should post our progress once treated similar to other logs from other treatments.

This info could be very useful in many ways....
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Postby skydog » Wed May 06, 2009 4:47 pm

Great !!! Chris congrats on getting in. You may have to swing north afterwords and pick up those oysters you asked about. ? for ya, medicated or non medicated stents. M
Plant a BIG Garden Live in the Moment
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Postby cheerleader » Wed May 06, 2009 5:11 pm

peekaboo wrote: I was thinking that we should post our progress once treated similar to other logs from other treatments.

This info could be very useful in many ways....

Good idea, Peek...I'll start Jeff's log tomorrow...

CHRIS!!!!! I'm proud of you for calling. Really, don't be afraid. Dr. Dake is an incredible doc....like an artist. Jeff said it was like playing with a really great jazz improvisor...Dake made adjustments as he went, and was in total command during the whole procedure. The first step is to wrap your mind around this, next - to get the MRVs and see if this is part of your disease, and then to open up those veins. Take each step at a time...you're already past the first one! Jeff can turn his head just fine...he just has to avoid really big, quick movements until the veins grow over the stents. No wrestling our teenager for awhile :)

I can see the results ALREADY of reduced edema in Jeff's head. His nose and ears aren't red, and his eyes aren't bloodshot for the first time in years! And the fog has cleared. In two months we'll have new MRIs to look at to see if lesions are healing. Can't wait!
AC
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby mrhodes40 » Wed May 06, 2009 5:35 pm

I can see the results ALREADY of reduced edema in Jeff's head. His nose and ears aren't red, and his eyes aren't bloodshot for the first time in years! And the fog has cleared. In two months we'll have new MRIs to look at to see if lesions are healing. Can't wait!


man I second that!! what great news. what absolutely interesting observations.

I was starting a poll to see whose going--I'm still going to do it

LOVE the regimen entry idea.
marie
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Postby Sharon » Wed May 06, 2009 5:44 pm

Chris said:
I may as well get it fixed while I'm still young.


Hey, I think I am probably the senior citizen around here and I am getting it done. I just hope those lesions are not hard as nails because of my age and are reversible. I will consider myself hitting the jackpot if I have no further disability though.

Yea, Chris - glad you went for it. :lol:

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