Did Dr. Dake comment about the veins? I know you said they were small. Anything else?
I need to talk to him more in depth...our recent conversations have been about post op care for Jeff, next appointments, etc.
What he said when we first looked at Jeff's MRV pics, and what we saw was venous stenosis...the veins look fine above and below, but at a certain point, parallel to each other at the base of Jeff's skull, the veins both tapered in really thin. One side (left) was completely blocked and lots of little veins had formed, trying to take the blood back. The other side (right) was almost closed all the way, very close to being shut off. Jeff has a cervical lesion at the same level of this narrowing. Dake thinks he was maybe born with this narrowing, and as he's gotten older, it's just gotten worse. The new stents are now pinching him a bit, because they are made to grow once they're in place, and the veins will stretch and grow around them. The thing I'm not sure of is if Dake thinks this is like a birth defect, of caused by something external...I don't know, and would love to hear his thoughts. I'll see if he'll send me a pic to post, or if he wants to save it for his research. He's been really cool about us talking about everything and sharing. This is all new to him, too!