I agree with all I have seen nurses and other medical professionals say on this forum. However remember there are other experiments underway to do with CCSVI: I believe Dr. Dake is either running one or intending to. Dr. Simka has published papers on his procedures for CCSVI, and Dr. Zivadinov has done different phases of a very large study which has not published yet.
Several other doctors are awaiting IRB approvals, including, including Dr. Mehta of Albany N.Y., and Dr. Sclafani of New York, N.Y.
There is some opposition to patients getting the procedure outside of clinical trials, which have been necessary in all drug based treatments, and this opposition is suspect because its major proponents have been recipients of sponsorship and money from the manufacturers of major MS drugs, which can reasonably be perceived as a threat to the 6 billion dollar MS drug market.
However there have been reports that Dr. Freedman, who has been a vocal opponent of this procedure, has started a CCSVI study of his own. He has in the past worked on stem-cell treatment, with limited success and some failure due to chemical toxicity.
Patients who have not had enough patience to wait for science to further elaborate, have gone to doctors at major in Poland, Bulgaria, Canada, and India. It will be further elaborated, and has been, by at least one study in a peer-reviewed journal in the imaging field.
Dr. Sclafani, in adjusting his application for his IRB's approval, has taken into account patient comments on this Forum.
Canada has had problems with conservative actions by physician organizations and their lawyers, who have threatened doctors licenses over CCSVI treatment. Similar actions by these people have taken place in several US states.
There are voluminous questions currently tabled with the Canadian House of Commons, particularly on the shutdown of medical and imaging programs and inability to be tested or treated for CCSVI, in alleged contravention of Canadian Health and Human Rights legislation.
The country of Kuwait, which has more financial power than Canada due to ownership of oil production, has begun CCSVI treatment of all of its 600 MS victims.
Finally, there has been published a paper documenting an agreement by vascular experts from 45 countries, in Washington, D.C. It recommends such experts treat cases of CCSVI with the same procedure, a simple balloon dilation using the same instruments as similar procedures done on veins throughout the body currently, for similar reasons.
This is a medical procedure done in hospitals, often in one day, however there is a lot of variation and it may be simpler or more complex depending on this variation.
I think that information should be enough to make an informed choice, but I agree that a person should make that decision for themselves, using the advice of doctors, and not by only reading this topic, or this forum.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.