CureOrBust wrote:I saw one of my neurologists a few days ago (before I had fully caught up with the happenings surrounding Dr Dake) and informed him of SOME of the things that were happening around this topic. He got interested, and spoke of maybe setting up some simple trials against the theory (to prove or disprove it, as I told him my personal "half" proof experience with another neurologist he greatly respects), and asked me to resend him the papers on it. I also sent all the info regarding cheer's husband and dr drake and the fact that a number of you guys have appointments with him.
This neurologist is running the trials for Campath here in Aust, and is in what I would think is one of the largest MS / neurology teaching & treatment hospitals in Australia.
I gave him Dr Dake's contact details, so hopefully he will contact him.
No, you wouldn't think so would you. However, he read the paper the first time, and came back with a valid point that he "did not see how this could lead to MS". So I provided him Dr Simka's info and told him of Jeff's history (that I had only partially read the night before) and he read Dr Simka's theory (and Zamboni's diagram explaining his belief from his presentation) in front of me and actually on the spot raised the possibility of looking into it himself. I think this speaks BUCKETS in his ability to be open to new theory's, considering he is working with what is considered one of the current best possibilities for MS. He also asked me to resend him the original articles, before which I read about Dr Dake, and have now passed this info onto him as well. If he takes it further, he may contact Dr Dake, and you therefore have a neurologist (I would think with many connections) talking to the vascular guy.cheerleader wrote:I really don't think a neuro running trials for Campath is going to be interested in pursuing endovascular surgery for you. But I could be wrong....
I agree with you 100%, I think the doppler is just the poor man's quick check, and you can read Zamboni's articles that he used it as a means to get approval off the ethics committee to do his venographys.cheerleader wrote:MRV (magnetic resonance venograms) to see the actual area of stenosis. The doppler scan points to the direction of blockage, but you need to actually know where it is, to get relief.
I am really glad for you and jeff, even if this isn't the be all and end all, it certainly is "a GIANT step for mankind".cheerleader wrote:There'll be alot more info on here. Jeff's post op one week from his dual jugular stent procedure (written up on regimens)
ahhh... has anyone contacted Montel Williams or the Osmand? or even someone else in the media's eye, with MS?peekaboo wrote:I would like to help spread the word of CCSVI especially for those who can't get to Calif.
OK, I sent a quick but sober email to the address on both these peoples public web sites.CureOrBust wrote:ahhh... has anyone contacted Montel Williams or the Osmand? or even someone else in the media's eye, with MS?
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