How to Understand Remission in CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby robbie » Mon May 18, 2009 9:14 am

always thought my first significant episode was started by a mushroom trip.

Now thats funny :lol:
Had ms for over 19 years now.
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Postby cheerleader » Mon May 18, 2009 9:28 am

zap wrote:Huh.

I could never figure out any possible connection when I was looking purely from the auto-immune angle, but now it makes more sense - psilocybin (the active ingredient in magic mushrooms) is a vasoconstrictor.
Hmmm, and now that I think about it, with my allergies as a kid I was on a ton of various antihistamines, many of which are also vasoconstrictors.
And oh, crap - so is cannabis ... which is why both pot and psilocybin are used to treat migranes and cluster headaches ...

I'm definitely going to pay attention to what vasoconstrictors I come into contact with, an minimize their combination where I can't or won't rule them out entirely.
PS - there simply HAS to be a way to modify the song/rhyme to work for CCVI - "the brain that drains flows mainly in the veins" or "the veins that drain must flow freely from the brain" ... somehow it's gotta work, it comes to mind everytime I find myself typing about the veins that drain the brain lol


Hey Zap...welcome to the party. We only have virtual mushrooms here...
Yup. Vasoconstrictors don't help. Vasodilators, however, can be quite useful. This is how I started on this crazy path last year. I noticed that every alternative treatment that helped MS patients- opened up the veins. LDN, prokarin, meditation, supplements, low fat diets, you name it...all created flow. That was the endothelial program...and then came Zamboni.

I love your song lyrics, and the rain in spain/brain that drains is now going to be my personal earworm (ohrwurm) today. Thanks for that!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Mon May 18, 2009 9:40 am

zap wrote:And oh, crap - so is cannabis ... which is why both pot and psilocybin are used to treat migranes and cluster headaches ...


That's not good for me to hear. Maybe this is why it helps with somethings, but conversely makes my legs weak. I think I'll try and go cold turkey until Stanford and see how I feel. I can't take it with me on the plane anyway and this might be a good experiement. I did shrooms a few times in college, but never had an experience like that 8O .
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vasoconstricters

Postby akaheather » Mon May 18, 2009 8:46 pm

"Cold, fear, stress, and nicotine are common exogenous vasoconstrictors."

For all the smokers out there. :cry:
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Re: vasoconstricters

Postby NHE » Tue May 19, 2009 2:40 am

akaheather wrote:"Cold, fear, stress, and nicotine are common exogenous vasoconstrictors."

For all the smokers out there. :cry:


I don't wish to turn this into an anti-smoking rant as it's not the right place for it but here's something else for smokers to consider. How long do you want to live?

This data plot was taken from an online presentation.

      Image



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Postby zap » Tue May 19, 2009 1:12 pm

Loobie wrote:
zap wrote:And oh, crap - so is cannabis ... which is why both pot and psilocybin are used to treat migranes and cluster headaches ...


That's not good for me to hear. Maybe this is why it helps with somethings, but conversely makes my legs weak. I think I'll try and go cold turkey until Stanford and see how I feel. I can't take it with me on the plane anyway and this might be a good experiement.


Whoa, I take it back. That's what I get for slap-dash research ... it now appears that THC is the opposite - a mild vasodilator! So don't feel compelled to cut back yet ... (and btw, if you're flying domestically, it's really no problem bringing a small amount with you. I usually just carry it in my pocket, or in a pocket of some packed clothing in my carry-on.)

Anyway, I am starting a separate thread to talk about vasodilators and vasoconstrictors now ... too complex and potentially vital a topic to have as an aside in here!
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Postby IHateMS » Tue May 19, 2009 1:49 pm

My first neuro event was bell's palsy about 22 years ago (after flight to Chicago).

I have always had bad allergies and blood sugar issues.
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Postby Loobie » Wed May 27, 2009 5:38 am

I have another "memory" that I need to post. I already posted one thing about being initially diagnosed with Exercise Induced Ocular Ischemia. Well one other thing that just popped in my head yesterday that was forgotten because I can't work hard enough to get myself worked up anymore.

Even though I was in top shape from High School until about 40 years old, I always suffered from beet face. Everyone would even comment on it. As in shape as I was, when I would run hard or work out hard, my face would get inordinately beet red. It contradicted my fitness level as it looked like I was ready to pass out. And it was just my face. I'd always thought it was just normal for me. Maybe it was and maybe it was caused by too much blood jammed up in my brain. We asked for random thoughts, and I think this qualifies!
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Postby zap » Wed May 27, 2009 11:16 am

huh, I've noticed that more and more lately as well. maybe not totally beet red, but red, congested looking and feeling face whenever I get heated up from exercise and heat.
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Postby whyRwehere » Wed May 27, 2009 1:01 pm

My husband just told me that whenever he played soccer, or whatever, he would get really red in the face, too....
(that would be in the past, of course).
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Postby Lyon » Wed May 27, 2009 1:53 pm

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Last edited by Lyon on Sat Nov 26, 2011 12:56 pm, edited 1 time in total.
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Postby Loobie » Wed May 27, 2009 2:46 pm

Don't know about that one Bob, but I know someone had posted something along those lines and Cheer responded, but I have no idea what thread it would be in. Maybe ask Joan what thread it was in and she can find it.
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Postby cheerleader » Wed May 27, 2009 2:48 pm

Lyon wrote:Maybe a little off topic but my wife is currently dealing with high blood pressure which she is finding hard to get under control.

I know a lot remains to be proven but is there reason to think that vascular stenosis contributes to high blood pressure in people with MS?


Sorry your wife's having BP issues, Bob...no fun. Arterial stenosis and plaque is a cause of high blood pressure...venous stenosis isn't implicated. But it's all one body, and if the veins are having issues, the arteries could be, too.

Dr. John Cooke's cardiovascular book is terrific...he approaches heart/BP health from a healthy endothelium- has diet, menu planning and supplement info, and could certainly help blood pressure. He's the doc who hooked me up with Dr. Dake, and he thinks it's all related to endothelial health in the blood vessels.
The Cardiovascular Cure
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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Lyon » Wed May 27, 2009 3:02 pm

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Last edited by Lyon on Sat Nov 26, 2011 12:55 pm, edited 1 time in total.
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Postby Terry » Wed May 27, 2009 3:52 pm

Nah, I think it is different than blushing, Bob,
My face gets red too. Also my chest. My chest lights up like a Christmas tree. Def not normal.
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