Dr. Zamboni's website

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby peekaboo » Tue Jun 23, 2009 5:30 am

Interesting that the Sept. 8 conference is by invitation only...
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Postby Sharon » Tue Jun 23, 2009 7:43 am

Thanks Cheer!

I wonder if they will wait until Bologna to put the research on the website.
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Postby cheerleader » Tue Jun 23, 2009 7:58 am

Sharon wrote:Thanks Cheer!

I wonder if they will wait until Bologna to put the research on the website.


No idea. Today was supposed to be the date for the press releases and unveiling, but nulla. Sent a note to the folks at Hilarescere. We'll see what the plan is. I'll let y'all know if I hear anything.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby MaggieMae » Wed Jun 24, 2009 6:53 am

Cheer,

Please check you private messages. Important info and questions on meeting yesterday with neuro.
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Postby cheerleader » Wed Jun 24, 2009 2:24 pm

The press/website unveiling is waiting for the September 8th conference. Since they first contacted us, there are now many more doctors involved worldwide, and the Hilarescere Foundation wants to have their research included to further articulate the case for CCSVI. So....

Stay tuned. This is not going away- the doctors working on this paradigm want to have an international consensus, and that will be presented at the Sept. 8 conference in Bologna.

I know everyone is impatient for results, but it will only be three more months, and in the time frame of medical research, that's a blip.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Sharon » Wed Jun 24, 2009 2:35 pm

Thanks Cheer -

Waiting until September 8th just makes sense - I did not think they would put something on the Internet before introducing it to the public. And, as you said, three months is not long in medical research.

Sharon
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