Goin' to Cali

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Goin' to Cali

Postby Loobie » Fri May 15, 2009 3:13 pm

Well my date's tentatively set for week of July 13. He told me to block out 3 days but it would maybe only take 2. I can't flippin' wait.
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Postby mrhodes40 » Fri May 15, 2009 3:54 pm

Yah Lew! Yeah I am so happy for you! woot woot!!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby cheerleader » Fri May 15, 2009 4:11 pm

Lew...
this is terrific news. Early July is a fine time to come to northern California. Cooler temps by the ocean, and we don't get humidity and/or mosquitos :) It will be here before you know it.
congrats, bud-
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Needled » Fri May 15, 2009 6:10 pm

Excellent news!! You guys are all just rockin' along full steam ahead. Awesome. :D
N
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Postby skydog » Fri May 15, 2009 9:47 pm

Great news Lew !!! West coast can grow on ya... I will be just ahead of you. Bags packed for tomorrows fishing trip. Hitting the hay... Night Mark
Plant a BIG Garden Live in the Moment
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Postby Loobie » Sat May 16, 2009 6:51 am

I'm actually going to try to pull it ahead if possible, but I'm not going to push it. I was thinking June but saying July when talking to the good Dr. and it really worked out for his schedule, so I'm not sure, but I'm going to ask to pull it ahead. The slightest balk and I'll just leave it alone, but I am going to try for sooner.

And Mark, ANY coast can grow on you when your only natural wonders are the hill in your backyard :lol: . It's just nothing but flat and no big bodies of water around here. But we sure can farm and pump out factory workers!
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Postby Terry » Sat May 16, 2009 8:02 am

Lew,
I am really excited for you. I keep thinking this is too good to be true, and yet I'm starting to feel like maybe I won't have this MS thing forever. Hope is a good thing. Fingers crossed for all of you who are getting this done. Fingers crossed for me. Love and thanks to all of you.
Terry
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Postby Loobie » Sat May 16, 2009 9:34 am

Since everything in my mind goes back to Sports, I'll use a sports analogy to try and get a common ground for how I view hope. To me it's one of, if not THE, big things that are necessary to make it through horrible things in your life.

I liken it, in it's "nebbulousness", to locker room chemistry. No one can totally verbalize why it's so important, but when you don't have it, you can have all the talent in the world and still not dominate. You have it and you can have a team like the Reds :D kicking butt with 1/2 rate talent.

I think that is what made me explore spirituality so much. I mean how do you do down to a prison, in Peru or someplace like that for example, and still find people with a positive outlook. I mean they really know they are going to be treated worse than a goat, get malnourished, and never have a chance at a fair trial. ie nothing to look forward to. But yet there are some who have a good outlook. The thing they have is hope. Most of them are very spiritual and say that's what gives them hope.

Talk to an oncologist sometime and he'll tell you that people who lose hope tend to not make it. People who keep hope alive, tend to do better. Like I said before, I 'm a hope junkie. Your feeling like you might not have this forever may or may not be true. But it feels pretty damn good to feel that way doesn't it? I think the MS rubber bracelet is extremely appropos. It simply says HOPE. They nailed that one if you ask me.

Thanks for the good vibes! I just PM'd you also.
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Postby Sharon » Sat May 16, 2009 7:38 pm

Great news Lew! Glad you are onboard. :D :!: This is a kick! I can hardly wait to turn on the computer in the morning to see what is new.
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Postby catfreak » Sat May 23, 2009 8:46 am

Hey Lew,

I am so excited for you and everyone else that is getting this going. I wish you the best and you are in my prayers everyday.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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