Blog Post Regarding CCVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Blog Post Regarding CCVI

Postby marcstck » Mon May 18, 2009 12:44 am

I've posted to my blog some info regarding CCVI, and have included a link to this forum.

Please give my post the once over twice, and report back if I've misstated anything.

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Postby mrhodes40 » Mon May 18, 2009 7:27 am

It seem really clear and concise and well done. I'm glad you did it.

It is very mporant from a researchers/medical POV that Dr Zamboni included many people with other diseases as controls in his studies--vascular diseases of various types and neuro diseases--, they did not have this problem either. I don't know if it matters enough for your article's readership though. I get lost in the weeds when I write: you are concise..... :oops:

It's time for mainstream researchers to start looking beyond accepted MS dogma, which thus far has brought us treatments that are only partially effective, and often highly toxic. Surely, there must be a better approach to treating MS than suppressing the intricately complex human immune system

I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you... This is my regimen thread Read my book published by McFarland Health topics
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Postby Loobie » Mon May 18, 2009 9:03 am


I'm envious of your concise writing style. Your website is very well put together. Great job dude.
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Postby cheerleader » Mon May 18, 2009 9:45 am

Great job, Marc. I agree with Marie and Lew...your writing is intelligent, succinct and clear (certainly not as crazed as your wheelchair driving!)
Only one correction, and it's my fault. It's actually CCSVI
I miss-acronymed it it back in December, and have been trying to fix it up. Just in case folks google it, they'll get all the pertinent information.
Thanks for bringing this to your blog followers. And NYU Langone Medical Center has a terrific interventional radiology dept. and MRV....just saying :)
all the best,
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby Artifishual » Mon May 18, 2009 10:30 am

dude you have mad skills!! :D excellent job! and those pictures and videos are sick :wink:
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Postby peekaboo » Mon May 18, 2009 10:43 am

Great job (can only repeat others) :lol: Great idea to put on your personal website in a realistic way...audience could be medical or ms'rs
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Postby marcstck » Mon May 18, 2009 11:30 am

Thanks for the feedback, folks. I've made the changes suggested by cheerleader and Marie.

It takes a bit of editing to keep my writing clear and concise. :roll: thanks for the kind words, though...
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