This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi All -

I've got an appointment with Dr. Dake starting July 14th. As so many have said, he and Angela could not be nicer. I will eagerly read about those who go first, and will happily post during my time there.

Now that I have booked it, I started wondering about the implications for my using Copaxone. I will need to discuss it all with my neuro, but I am wondering if anyone who has gone/is going has changed anything.

- Arcee

Congrats, Arcee...
Hope you find some answers at Stanford!
Jeff's still taking his copaxone and supplements. He's waiting to see the 2 month MRIs to re-evaluate, but he's been stable (no progression) on his program for 2 years, and doesn't feel like giving up his routine. If you're doing well, I'd recommend sticking to your program until we have more research. Just my 2 pennies.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I'm thinking that is the right default too. Thanks.

Good to have another on board...I believe Dr Dake wanted a minimum of 10 subjects to write a paper about this procedure. I bet he will have more than he ver expected which is a good thing, the larger the sample the more accurate the findings will be.

Cheer - is Jeff going back to Stanford to get his 2-month followup MRI's, or will he be going to his neuro or to a vascular doc in So. Calif? It could make a difference on coverage by insurance.

Sharon

Jeff's blood work is being monitored here at home by his GP, to make sure his coagulation numbers are good, but he plans on going back to Stanford for updated MRIs and MRVs in early July (maybe we'll see Lew?) I think Dr. Dake wants them done there for his research (consistency of machines and technicians) so maybe that might make a difference?
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Okay, thanks Cheer - Dr. Dake did not talk to me about the follow-up so this is good information.