Four months out from original stent procedure-
two months out from ballooning procedure to thin the lining of left stent.
Off of blood thinners.
No relapses, no progression
No more heat fatigue, no more debilitating MS fatigue or brain fog
-Jeff did the red carpet at the Emmys on Saturday in a black wool tux, 95 degrees in full sun, for one hour of interviews. No problem. He said (after the 4 hour ceremony and 2 hour ball) I feel different this year, I'm tired, but not in that MS way...I don't feel that exhaustion anymore.
-He's working on 4 projects simultanously now...too busy to post, but he sends his regards. Watch "Georgia O'Keefe" on Lifetime this Saturday, starring Joan Allen, to hear his beautiful orchestral score.
Much better sleeping. No snoring or apnea, relief of spasms
-Jeff reports that he is dreaming again. He had stopped, and didn't even realize it. The dreams are back.
-He wakes up refreshed, and ready for the day. No more lying in bed, unable to move or get up.
-Jeff used to spasm thruout the night (we had to get a non-motion transferring mattress when he got MS, cause I wasn't going anywhere) No more spasms, just an occasional tiny tic. He sleeps like a baby. Me too.
Much less leg pain-
Jeff used to have daily burning and tingling in his calves. Now it is once and awhile, usually if he is stressed out from work, or doesn't have time to exercise. Most days it is gone.
Better color, appearance, mood
-So many friends and colleagues have commented on how healthy Jeff looks. How alive his eyes are again, how engaged he is with life. I notice this, too. His sense of humor is back, his goofy joy, his energy.
-He had a late night meeting in town last night, long drive, long meeting...came home and hung out with me and our son, still full of energy. He used to be passed out by 10pm, out cold. Now he's puttering around until midnight or so, reading, and up and going by 7:30am. Completely changed.
We remain upbeat about all of this. Jeff continues to take his copaxone, that's his call, and I'm supportive. He takes a bunch of supplements from the endothelial health program, and exercises pretty regularly. He's added some meat and cheese back into his Swank diet, since he's been feeling so good. And a glass of wine is OK again!
Again, Jeff was early in his disease, and we need to remember that results may vary, but for him, this has been a life-changer.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09