Hi from Jeff, re. my stent treatment at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby bestadmom » Mon Nov 23, 2009 9:12 pm

I'm hoping for the best for Jeff.
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Postby CRHInv » Mon Nov 23, 2009 9:17 pm

Oh my Joan, I didn't know you guys were going back. Please know I am thinking of you both. Please let us know what the good doctor finds. I am glad you are there for radeck too!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby cheerleader » Mon Nov 23, 2009 9:37 pm

CRHInv wrote:Oh my Joan, I didn't know you guys were going back. Please know I am thinking of you both. Please let us know what the good doctor finds. I am glad you are there for radeck too!


yeah...we didn't know we'd be here today, either. Dr. Dake didn't want to let too much time go on the whoosh and headaches. It's been 3 hours, so I'm assuming Jeff may have some new hardware. Trying to stay calm...everyone has gone home. Alone in waiting room. Glad I have you guys.
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby flipflopper » Mon Nov 23, 2009 9:48 pm

I’m also hoping that everything’s going to be alright with Jeff!
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Postby cheerleader » Mon Nov 23, 2009 9:57 pm

flipflopper wrote:I’m also hoping that everything’s going to be alright with Jeff!


Nurses just came in to say goodnight...Jeff's fine, Dr. Dake is being extra careful. Just exploratory and a small ballooning. It took awhile to get to the right area. He didn't even get any meds. The nurses all have crushes on Jeff (at least the female ones) so they came out to see who his wife was...they talked me down. Now everyone has left, and the cleaning crew asked me to turn out the lights and shut the door when I leave.
I'm signing off...thanks everyone, you guys are great. The prayers are appreciated.
Joan
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CureIous » Mon Nov 23, 2009 10:18 pm

Great news Joan. Hopefully a bit of angioplasty is right up his alley...

Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby SammyJo » Mon Nov 23, 2009 11:00 pm

We are all rooting for Jeff! Hang in there Joan, lots of love and light and prayers is pouring out of the TIMS crowd, direct to you guys.
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Postby ErikaSlovakia » Mon Nov 23, 2009 11:28 pm

Oh, Joan, I'm hoping for the best for Jeff!
Good luck for you both!
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby kinga » Tue Nov 24, 2009 1:05 am

Oh,I hope everything will be fine! sending good energy and prayers for You both!
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Postby whyRwehere » Tue Nov 24, 2009 1:34 am

Hmmmmm, I have no idea what time it is there (10:30am here). Hope you got to bed and your husband was fine...just waiting now to hear.
It's hard on you, too, Joan...I won't tell you to take care of yourself, because I can't even follow that advice. Too much stress, though, deep breaths........
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Postby LR1234 » Tue Nov 24, 2009 2:30 am

As Jeff was the first person that Dr Dake operated on there are bound to be things that need tweaking. I hope that Jeff feels better and that the whooshing stops and the headaches dissapear. We are all thinking of you Joan and Jeff xxx
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Postby ozarkcanoer » Tue Nov 24, 2009 5:58 am

Wishing for the very best for Jeff and Joan... And thank you for everything you have done.

ozark
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Postby CRHInv » Tue Nov 24, 2009 6:36 am

Hi Joan! How are you guys doing this morning?
Thinking about you!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby zap » Tue Nov 24, 2009 6:59 am

Are any of the other stenters experiencing tinnitus and headaches? I seem to recall some did but it was transitory?
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Postby Rokkit » Tue Nov 24, 2009 7:08 am

Really sorry you guys are going through more treatment, but I'm confident you are in the best of hands. Praying for the best for you...
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