Thanks, guys. We're home and resting. All good. Jeff's stents looked great. Jeff's right jug is now a freeway, but his left vein will always be smaller and less open. Dr. Dake wanted to check the whole left side where Jeff was having the whooshing, and he didn't find any issues or problems with the stents but noticed as he traveled up above Jeff's left stented area, around C1, he has a sharp 45 deg. angle bend in the jug. Dr. Dake actually tried to get the area more open, by ballooning and stretching, and achieved some more flow for Jeff. Of course, he will always want it perfect. He hopes this will keep the vein more open, but said that this area may continue to be a problem. He is considering a someday "tissue removing" procedure in the area rather than a stent, since the angle is too hard to insert a stent. But he sent us on our way with a happier, less whooshing Jeff, and made us promise to come back if Jeff has any more issues with that side.
Jeff is one of the folks with extremely high jug areas that the Liberation and open surgery could never have helped. We consider it a God send that we found Dr. Dake, because he is one person who is finding ways to deal with Jeff's malformed left jugular. It may mean ballooning or stretching again, but the great news is that Jeff has regained energy and vitality and increased oxygen in his brain. And we also believe we've stopped his demyelination and gray matter injury. All worth the effort.
I've also told Jeff that I want him to spend less time working, more time exercising and enjoying life. He's been under a great deal of work stress this fall, and it's taken a toll. Not hard to slow a type A person down, but in my heart I believe lifestyle, stress management and diet will be important pieces in the search for flow.
Alex is full time now, and loving it. The nurses and doctors at Stanford are thrilled to be helping MS patients recover some of their lives....they are honored to help. And me, yeah, I'm exhausted. But I sat with a woman who was there waiting for her husband, a heart transplant recipient. We agreed, every day is a gift. She shared her sandwich and some tears with me. We thanked God for our husbands...as after she went to take her husband home and left me, alone in the waiting room...I had you guys. God is good....to be continued!
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09