This Is MS Multiple Sclerosis Community: Knowledge & Support

Thank God everything's ok. It's pretty fitting that you guys still haven't stopped being pioneers.

So glad you're back safe and sound and everything went well.

Hello Jeff and Joan,

I want to say hi. There are hundreds of people from the Netherlands which are following this thread, and because we all share the same moon, we all see Jeff as our Armstrong too Hope all goes well, good luck, and please keep us informed, we are all so exited and wishes you two all the best.

Thanks!!!

-Alphons.

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http://www.ccsvi.nl/

Jeff and Joan,

I'm glad to hear everything went well. This is such a learning experience for all of us involved. Thank you again for "sticking your neck out" for the team.

Happy Thanksgiving. You've got so much to be thankful for, as do we all.

Michelle

Jeff and Joan, so happy that you are back at home. Thank you again for all you do. This one got to me. Maybe you could stick on that holiday card with the picture of Jeff's corkscrewed collaterals ?

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diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

This whole forum is awesome. I really feel the sharing, loving and compassion coming through. Alphons comments choked me up and that has happened to me over and over again as I read about our two steps forward, three back. Thanks to Jeff & Joan and thanks to all the rest of you also for being there for each other, no matter when the sun or moon are up on your side of the globe.
Hugs,
Lora

THanks, everyone! Home never looked so good.
Alphons...
Wonderful page about CCSVI in Dutch. Good work! Thanks for your comment about Jeff...that was poetic and very profound, and in English

Jeff and I love the Netherlands and he's been there many times to play and record with the Metropole Orchestra in Hilversum. The language there is "jazz" and everyone understands that!
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Hi Jeff !! I just want to tell you that what you said in the documentary that "MS is like Chinese water torture". I have never heard it so aptly stated before. That is just what I feel... like I'm being tortured. It makes me feel better that someone else understands. Thank you.

ozark

Joan - I am so happy that you and Jeff are home safe. Thank you again for all you have done. Have a wonderful Thanksgiving! I know you will and Jeff will be Thanked at many thanksgiving tables tomorrow.

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javaneen

Just getting some side dishes ready for the feast at my sister in law's tomorrow. Wanted to update. There is still a faint whoosh (he can hear only in complete silence) and really mild headache, but Jeff says his energy and spirits are great. He didn't have a left jugular before, and now he does, so stuff has changed in his circulatory system. And Dr. Dake says his stents look perfect...he just has a weird left jug, but it's functioning now. He's outside chopping firewood with Henry now.

I asked him (when he was getting prepped to go for his 3rd endovascular procedure earlier this week) whether he regretted doing this procedure...and he gave me a big no. He is so happy to be energized and alive again, and has no regrets.

We've been answering hundreds of e-mails from around the world this week, mostly from Canada...and it's been a huge honor. People are sharing their lives, hopes, trials and dealings with MS. We feel so fortunate to be able to listen, offer some encouragement and maybe direction. We don't know if this is "the" answer to MS, but we do know there is a connection. We want to help get the fundraising going for more research, and are committed to doing that we when get back in southern California.
Happy Thanksgiving, everyone. We appreciate you all so much-
Joan

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Oh yeah, and check out Jeff's beautiful score to the new Hallmark Hall of Fame movie on this Sunday, Nov. 29, 9pm EST on CBS-
"A Dog Named Christmas"
http://www.variety.com/review/VE1117941 ... id=32&cs=1

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thank you so much for asking him this and then posting. This exactly what I was wondering after reading his experience so far. It seems as though even if there are some side effects to this procedure, they a far better than the MS.

Very encouraging, thanks for being so open to all of us. Thanks to Jeff for taking the first step and going for this, you have opened a new door for many (myself included) to walk through and get a new outlook on life.

Best,
Aperture

I hope you have a happy Thanksgiving! I am so happy Jeff is feeling better. I think he is ultra brave!
Thanks for all you do for us

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

Now THAT"S fun!!!
I'll be at my TV.

Thank you Jeff! I am so glad that you are willing to share you very personal journey with the world. What a wonderful early X-Mas gift you have given us. As we peek over your shoulder, and the other 50 or so Liberated folks, we watch your post-op experiences and appreciate knowing it all, straight up, the good and the bad. We thank you again for your pioneering spirit and commitment to helping in this ongoing research.

Thank you Joan for all your hard work and research and bless you for sharing it with all of us. You have done so much for so many; this must be close to overwhelming when it comes to you having personal time, cause I’m thinking this is becoming a fulltime job for you!

Hugs,

Lora