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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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bluesky63
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PostPosted: Fri Nov 27, 2009 9:32 am 
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A year ago you could never have imagined where you'd be today. You are both amazing and inspiring. Thank you so much for everything you've done! All the best as recoveries and discoveries continue. :-)
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Lgleaton
PostPosted: Sat Nov 28, 2009 6:29 pm 
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...am so glad to have found such a caring group of people. No matter what happens with my MS, I know I have found a new family.

Thank you, each of you, for being here!

Lisa G :P

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DX RRMS 11/02<br />RX Copaxone 12/02 - 3/10<div>Elevated head of bed 3/10 - present</div>
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cheerleader
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PostPosted: Wed May 12, 2010 12:11 pm 
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Jeff's up at Stanford today for his one year check up!! He's had the MRV/MRI (said it's much faster than it was last year) and is meeting with Dr. Dake now. Will update when we know more.
can't believe how fast this year has gone!
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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LR1234
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PostPosted: Wed May 12, 2010 12:27 pm 
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Cool thanks Joan!! Fingers are firmly crossed xx
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Rokkit
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PostPosted: Wed May 12, 2010 12:28 pm 
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OMG, this is so exciting!
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rettahb
 Post subject: remembering a year ago
PostPosted: Wed May 12, 2010 12:53 pm 
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This is an anniversary for all of us! Yay!!!!
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ozarkcanoer
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PostPosted: Wed May 12, 2010 1:02 pm 
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It will be interesting to hear the results of Jeff's scans !

ozarkcanoer
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ndwannabe
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PostPosted: Wed May 12, 2010 1:38 pm 
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Happy anniversary!

Can't wait to hear about the results.
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cheerleader
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PostPosted: Wed May 12, 2010 2:11 pm 
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W00T! He's coming home this afternoon. Stents look good, left side is still weird above the left stent (like it was in November), but the actual stents are great and so is bloodflow. No reflux, jugulars are working. NO NEW LESIONS, no enhancement, no progression --this is huge. Jeff had over 20 lesions at diagnosis 3 years ago--his neuro will compare his new MRI to his old one to see if there is lesion healing (too many for Dr. Dake to compare)

He'll try a no caffeine regimen to see if he can get some headache and whoosh relief (still an issue). Dr. Dake may go in again above that left stent someday in the future and try a roto-rooter routine, but that's for another day.
The good news is, Jeff's got f-l-o-w!
yippee-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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bestadmom
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PostPosted: Wed May 12, 2010 2:18 pm 
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Yippie! So glad to hear it. Now let's get rid of his headaches, and not the proverbial ones!
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newfie-girl
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PostPosted: Wed May 12, 2010 2:35 pm 
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Yahoo,,,,,,,,,,,,"I'm Over The Moon" with the wonderful news of Jeff's check-up and continued progress after a year of "LIBERATION", you guys are amazing...........sooo happy for you :D :D :D :D


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Opera
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PostPosted: Wed May 12, 2010 3:02 pm 
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Excellent news Jeff. Wish you continuing success as a result of the liberation procedure.
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ozarkcanoer
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PostPosted: Wed May 12, 2010 3:17 pm 
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Whoopeee !!!! NO LESIONS !!! This is big ! I have around 40 lesions. I hope I can get the treatment and have this kind of outcome. I am so super happy for Jeff and Joan !!

ozarkcanoer
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magoo
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PostPosted: Wed May 12, 2010 3:24 pm 
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Holy Cow!!! Awesome news!!! I am so happy for both of you and for all MSers! I hope to have such a report in October :) Thanks for sharing such GOOD news.
Rhonda

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Needled
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PostPosted: Wed May 12, 2010 3:33 pm 
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Great news!! No new lesions -- that's just awesome. I'm so happy for you both .:D :D
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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