Cece wrote:Such a great outcome. Congrats.
If you were to guess, where do you think he'd be today if he hadn't gotten CCSVI treatment? Was his MS fairly stable, or were things getting worse and since CCSVI they've been getting better?
Jeff was not in a good place with his MS before we went to Stanford and saw Dr. Dake, Cece. From his dx in 2007-2009 he was exhausted, unable to get out of bed in the morning, not sleeping well at night due to central sleep apnea (different from obstructive sleep apnea, this signals low O2 levels in the brain) and bladder issues, depressed, in a lot of pain. His MS looked "stable" on MRI from his first flare, but his symptoms were killing him. Copaxone didn't change his symptoms. He was on baclofen to deal with painful spasms. The heat intolerence was terrible, since we live in LA, he couldn't think clearly on hot days. He tried cooling vests and caps, nothing worked. Tried a handful of meds, everything just made him more tired and depressed. I feared the worst. I hazard to guess where he'd be today, Cece. Don't like to go there. Our family was not in a good place.
You can start at the beginning of this thread and read, in Jeff's own words, what changed after his jugular veins were opened. This is a man who had no idea what to expect from the procedure (since he was first in north America) and because of this, I have to discount placebo. Also, many of his improvements came while he was asleep, in a prone position when jugular veins are utilized. Within a month he was sleeping thru the night, no longer waking, gasping for air, no more spasms (no more baclofen), heat intolerence or cog fog. He was dreaming again, and during the day he was social, engaged, energized. He began exercising regularly, and our son and I saw a return of the Dad and man we'd know prior to that first MS flare. The CTV show documents this quite well (Part 2 of The Liberation Treatment) http://www.ctv.ca/CTVNews/WFive/2009112 ... on_091121/