Hi from Jeff, re. my stent treatment at Stanford
- cheerleader
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- Location: southern California
Thanks for the encouragement, everyone. What a great group of supporters. I'm heading out for five days to spend some time with my Dad in Florida. May not get on line to check in, since I'm leaving the laptop home...Jeff may or may not post, since he's busy with work and taking care of our son while I'm gone. Know that we're good here...Jeff's still feeling alert and much better, and that this bump in the road will be dealt with in due time. Will be praying for the next group to go thru the Stanford doors...traveling mercies, all.
xoxo,
cheer
xoxo,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Rest take a break and rejuvenate! have a safe trip Cheer you deserve a nice little siesta!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
- Loobie
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Go down there and stay away from the computer for a while! You've been tirelessly pursuing this for all of us for quite some time now. I know you're Wonder Woman, but even she needs a vacation! Seriously, get some rest for body, mind and soul. I hope you have a blast and a great time with your pops. You'll come back loaded for bear and ready for more!
Hey Jeff, I'm a guitar player with weekly obligations. I was wondering if I ended up getting stents, how long do you think it would be before I could stand on my feet playing for an hour or so? I play a fairly heavy electric and the strap across my collar bone area already gets tiresome, so I'm imagining the worst with stents in my neck.
Rokkit
Rokkit
- gibbledygook
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As I was crunching a bowl of cereal yesterday I thought I could feel the stent on my left side. I started wondering if the stenoses have arisen due to the bite of the jaw. Has this occurred to anyone else?
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
- gibbledygook
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Wisdom teeth thread: http://www.thisisms.com/ftopicp-61015.html
- cheerleader
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Hey Rokkit...back home from my trip, and outside with Jeff. He's setting up some outdoor speakers while I post. Asked him what he thought. He said it would ultimately depend if/where your blockage was, but he doesn't have any issues playing keyboards or carrying things, and the arm position you'd be in playing guitar shouldn't be a problem. He thought you might need to take some time off to heal (a few weeks), if you did the procedure...his neck and shoulders were sore for 6 weeks.Rokkit wrote:Hey Jeff, I'm a guitar player with weekly obligations. I was wondering if I ended up getting stents, how long do you think it would be before I could stand on my feet playing for an hour or so? I play a fairly heavy electric and the strap across my collar bone area already gets tiresome, so I'm imagining the worst with stents in my neck.
Rokkit
Had a good visit with my family, and am glad to be home with my guys in socal. Wow...lots happened in several days. I still can't believe how quickly it's all moving. Jeff goes back next week for a checkup/possible balloon procedure on that slightly narrowed left stent. He still feels great, energetic and upbeat...and that's after taking care of the house and our kid all week while I was gone
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
- CureOrBust
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I missed that original post. Sorry.cheerleader wrote:Jeff goes back next week for a checkup/possible balloon procedure on that slightly narrowed left stent.
So, one of Jeffs stents have narrowed after their placement?
Does Dr Drake have any idea what forces were acting on the vein to cause the metal stent (I understand its a mesh, not a solid tube) to become deformed (not knowing the correct terminology)? why / how did this happen and what caused it?
Also, has Dr Dake ever discussed a time line for at what point he can use his simple balloon procedure to prop up a deformed stent, over having to insert a new stent, within the old one?
I really should of being paying attention...
- cheerleader
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- Location: southern California
Hey cure...
Hard to keep track of it all...Jeff's new endothelial (blood) lining is a bit thick at the base of the left stent. The metal is fine, his blood lining isn't thin enough in one tiny area. Dr. Dake is a perfectionist and wants the blood flow to be perfect...so he's kept Jeff on the blood thinners a bit longer and wants to check the lining again. Because we're close and this isn't a big deal, Jeff's going up again. But it is something to consider with stents...the lining the body makes is what can be a problem.
cheer
Hard to keep track of it all...Jeff's new endothelial (blood) lining is a bit thick at the base of the left stent. The metal is fine, his blood lining isn't thin enough in one tiny area. Dr. Dake is a perfectionist and wants the blood flow to be perfect...so he's kept Jeff on the blood thinners a bit longer and wants to check the lining again. Because we're close and this isn't a big deal, Jeff's going up again. But it is something to consider with stents...the lining the body makes is what can be a problem.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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