This Is MS Multiple Sclerosis Community: Knowledge & Support

Has anyone heard from Cure? (I hope no news is good news.)

Heather

Thanks for asking heather, I have been a bit busy with work the last couple of days, so I have not posted.

I also did not post as I was let down a little by the radiologist and the neurologist, as the neurologist only requested an MRV of the head; and as such would miss where all the "action" is most likely to be happening (and all the images below start to fade ).

Just for reference, I did get some interesting photos, which can be made to play like a video, so you see your head rotate in two different planes. ie if they had done the full area down to my diaphragm, i can see how it should be fairly easy to spot an irregularity. If anything, the resolution on the CD they gave me is not that high. I have included the images (although probably worthless for diagnosis, for peoples curiosity)

Here are 4 selected images (there are lots more, each at slightly rotated angles):
Side On


Front on (really does not do justice to my high cheekbones, but I can see the similarities)


Side On

Front on


I am planning on emailing Dr Dake, letting him know what's happened, and if he is still interested I will send him a copy of the whole disk. I will also be contacting the neuro to see if I can get it done again, but properly. I was kind of expecting them to miss something, just not miss doing it to my diaphragm.

Cure - what a tangled mess of webs you have (just kidding). How disappointing that you did not get the imaging done which you wanted. Hopefully, Dake will be able to help you out.

Your doppler looks quite different than mine....I had no spaghetti but just 2 veins in the rear of my head shaped like goggles and then of course the jugs...the contrast between black & white was much clearer...no mist

(maybe i'm missing some brain cells )

Azygos problems for me was found in the floroscope during surgery...

I keep trying to get them to do my MRI MRV's from my better side too..no dice

It looks different than mine as well. Mine seemed to have more of a deep vein view the bigger deeper veins and not so much of the nework on the skin which appears to be what is going on in your maybe? I do not know anything at all about this subject at all but mine looked more like this

http://www.neurologyindia.com/getarticl ... _275_11074

On yours the jugs a look almost like a shadow instead of lighted up big and clear? I will be interested to hear What Dr D says about it

How was the IV part?

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Maire's pics (bottom 2) Looked like mine too...I am a MS copy cat

Cure, you handsome devil!
your pics look like the superficial/facial veins....Jeff's looked like the pics Marie linked to- only showed the major internal veins.
Dang!!!! Hope you can get some info out of these. They're certainly suitable for framing!
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Maybe its a timing thing like they took the pictures a moment too soon before the bigger internal veins were lighted up. It is a lot different looking though.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

BTW Cure you are having to work way too hard for this, I am really bummed for you geez...........

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

123

I'm just guessing, but I think they weren't focused deep enough.

my thoughts exactly...maybe a higher strength 7 tesla?

ANd this maybe goes to show how variable these things are. We lay people think of these tests as very black and white: get an MRV see what you need to. Get a doppler and see if you have blockages.

It is clearly more complicated than that...

I guess that's why MRI technicians go to school for a few years........ Dr Dake was pretty involved with Jeff's MRV and he had just given an inservice to the staff when I got mine to explain what was up and exactly what he needed. There was a whole gang in the dark screen room talking and discussing mine when I headed out of the tube.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Marie wrote:


When I was in the tube, there were different voices talking to me - I thought this was odd because there was just the technician and me when I went in. Well, as I had posted before - the technician was wondering what was going on - he said there have been more doctors in here telling me what to do (I had my MRI/MRV at the Blake Wilbur clinic - Jeff, Marie, and Holly had theirs at the main hospital). He told me that was why I heard the different voices, they were all wanting more and more images - I guess they kind of invaded the technicians space!

this is about MRIs, but it's worth reading to get an idea of what one might encounter with different technologists...
http://www.boston.com/news/education/hi ... an/?page=1