I hope a doppler will be a good first step

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby mrhodes40 » Fri Jun 12, 2009 11:02 am

Why, that was a GREAT article well worth the read. :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Sharon » Fri Jun 12, 2009 11:36 am

Great article - I am forwarding on to friends and famil.
Thanks
Sharon
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Postby whyRwehere » Fri Jun 12, 2009 11:46 am

Gosh, I'm blushing - I didn't write it, though.... :oops:
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Postby CureOrBust » Sat Jun 13, 2009 7:56 am

Lots to post. probably mostly rubbish :oops:
Sharon wrote:what a tangled mess of webs you have.
said the spider to the fly...

Mrhodes40 wrote:I do not know anything at all about this subject at all but mine looked more like this...
I thought mine were low res, but the one from the linked site is REALLY low res. I doubt yours were that bad?
PeekaBoo wrote:Your doppler looks quite different than mine....I had no spaghetti but just 2 veins in the rear of my head
cheerleader wrote:your pics look like the superficial/facial veins....Jeff's looked like the pics Marie linked to
I am far from knowledgeable on this subject, however, my stab in the dark, with my eyes closed, is that the MR machine has a setting for what minimum diameter of vein to image, and below which size to ignore. I guess they used a standard setting, with the sensitivity turned all the way up, and hence the "cloudy" appearance because all the superficial veins were also imaged. Dr Dake knows he is looking at the larger veins, and so sets this control appropriately, where my guys used their standard settings. And if you forgot how this paragraph started, I don't know what I am talking about.

When I found out they were only planning on doing down to my jaw line, I asked (/ informed them politely) that they needed to do down to my diaphragm. In response, they said that the Dr had only requested the head, and that they had already "programmed the sequence into the machine". So it sounded to me, they used an "off the shelf" program / sequence / settings.

whyRwehere wrote:I'm just guessing, but I think they weren't focused deep enough.
PeekaBoo wrote:my thoughts exactly...maybe a higher strength 7 tesla?
I think they were focused (for the little area they did) deep enough, as all the veins appear in the image (from all depths), my guess is that they just had the sensitivity turned up to high in the part of the computer system that interprets what comes back from the scanner, into an image. After reading the first few posts, I took to the images with a photo manipulation software, and if you alter the brightness and contrast of the image, it heads towards the "expected image'.

Cheerleader wrote:Cure, you handsome devil!
ohh, stop, I'd blush, but it may affect my next scan. :) I have to admit, I keep looking at these images, I mean, its not like its my reflection in a pool of water.

Actually, while this post is reference with it may ALL be rubbish, on the "crazy side", in my last view of the first two images, I note that they appear to be the same scale, yet the image of my jugular widths appear a lot more narrow from the front. hmmm, I might just go back to the originals and spin my head slowly and follow each individual jugular as it goes around. Remember, "crazy post" :oops:

By the way, does anyone know if the image is of the blood flowing within the vein, or of the blood and the vein?
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Postby mrhodes40 » Sat Jun 13, 2009 9:29 am

Mrhodes40 wrote:
I do not know anything at all about this subject at all but mine looked more like this...
I thought mine were low res, but the one from the linked site is REALLY low res. I doubt yours were that bad?


NO they were clear as a bell, but the thing that is different is that the jugulars were the lighted up thing not the little surface veins which were as if invisible, more like the linked picture.........
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby CureOrBust » Sun Jul 12, 2009 1:26 am

going back a little while ago, I posted some images from my MRV (only of the head) which drew comments such as below:

peekaboo wrote:Your doppler looks quite different than mine....I had no spaghetti but just 2 veins in the rear of my head shaped like goggles and then of course the jugs...the contrast between black & white was much clearer...no mist


mrhodes40 wrote:It looks different than mine as well. Mine seemed to have more of a deep vein view the bigger deeper veins and not so much of the nework on the skin which appears to be what is going on in your maybe?
...
On yours the jugs a look almost like a shadow instead of lighted up big and clear? I will be interested to hear What Dr D says about it

I recently had Dr Dake say he was happy to review the images that were taken, and comment on what was available. When preparing it to send to Dr Dake, I looked over the images on the disk, and found another sequence, that looked more like what others may of expected.

Image
Image

The commnent I did get back was basically
DR Dake wrote:...Unfortunately, the study itself is somewhat noisy with a lot of arterial overlap that obscures resolution of the venous anatomy. I looked at every image of every sequence and I can say that the left sided venous drainage is asymmetrically diminutive compared to the right. It is difficult to pinpoint focal severe lesions rather it is more diffuse in nature. Bottom line, before doing anything else I would proceed to have a CT venogram from the aortic root up to the top of the head. This will clearly delineate the venous anatomy. It is much more operator independent that MR, but it does involve some radiation....


One thing I also noted, which I guess I never expected, is how asymetrical the insides of my head are 8O :!: Image I'm going to have another look at alex's shots. My brain (in the MRI's) is also lopped sided... Image
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