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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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akaheather
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PostPosted: Fri May 29, 2009 9:04 pm 
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I'm gonna wait and see what all this does to everybody else before I wade off into this


Okay, THAT was funny!! :lol:

I'm still trying to get a bite here in Austin. Heck, I'd take a nibble. Keep me/us posted if you find anything.

:lol: (Yep, still laughing. )

Heather
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Artifishual
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PostPosted: Fri May 29, 2009 9:19 pm 
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thanks heather and you keep your ear to the ground also............
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cheerleader
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PostPosted: Mon Jun 01, 2009 6:19 pm 
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Artifishual wrote:
I'm gonna wait and see what all this does to everybody else before I wade off into this....................................... 8O
kidding~ still have not heard anything from Baylor. Cheer. Help here!!!! :!:


Hey Arti...
Did you ever get a phone call back from the doc at Baylor? Has he ever responded to any of your inquiries? I know you had mentioned that his nurse promised a return call....nothing?
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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Artifishual
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PostPosted: Mon Jun 01, 2009 6:30 pm 
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nothing cheer, kinda discouraged. even emailed my neuro to ask if he knew anyone in this field, but afterward i remembered him saying he didn't so i will start looking else where :?
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Jamie
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PostPosted: Tue Jun 02, 2009 10:48 am 
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Hey Chris,

Have you discussed this with Hopkins?

I'm humming and hawing over speaking with Ed about it.

It does seem to be that everyone who gets tested needs intervention, regardless of cause or effect.

Cheers,

Jamie
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chrishasms
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PostPosted: Tue Jun 02, 2009 12:12 pm 
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123


Last edited by chrishasms on Sun Dec 06, 2009 1:15 pm, edited 1 time in total.

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Jamie
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PostPosted: Tue Jun 02, 2009 12:29 pm 
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That's exactly what I was thinking and its good (and typical of the man) that Doug is on board.

I too am watching with interest!
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Artifishual
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PostPosted: Tue Jun 02, 2009 4:28 pm 
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Cheer I did get an email today from my neurologist asking for Dr. Lin's contact info ? maybe he is going to get in touch with him and discuss getting me treated? one can only pray!
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cheerleader
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PostPosted: Tue Jun 02, 2009 4:52 pm 
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Artifishual wrote:
Cheer I did get an email today from my neurologist asking for Dr. Lin's contact info ? maybe he is going to get in touch with him and discuss getting me treated? one can only pray!


Great news, Shannon! Perhaps with a referral from your neuro, Lin will be more apt to at least test you. Hopin' n prayin' this works out! Lin has the skills and machinery to test and treat CCSVI.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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CureOrBust
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PostPosted: Tue Jun 02, 2009 9:01 pm 
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I don't know how good this will be to try, but here are some names of phlebologists which are registered to the "Australasian College of Phlebology (ACP)"; its a start. I note that Dr Simka is a phlebologist, and at the international phlebology conference in Monaco in September (http://www.uip2009.eu/infogen_eng.html), he and Zamboni will be presenting their works, along with their results. Pointing a phlebologist to this, may get them interested. (The URL's below gave me problems, and the quote was the only way to keep them together)

Quote:
http://www.phlebology.com.au/forms/detail.aspx?DocID=jolivencia&OtherSpecialties=Vascular Surgeon&ServicesPerformed=


Quote:
http://www.phlebology.com.au/forms/detail.aspx?DocID=nmorrison&OtherSpecialties=Vascular Surgeon&ServicesPerformed=Endovenous Laser Therapy, Venous Surgery, Venous Thrombosis Management, Ultrasound Guided Sclerotherapy


Quote:
http://www.phlebology.com.au/forms/detail.aspx?DocID=jkingsley&OtherSpecialties=Vascular Surgeon&ServicesPerformed=


Quote:
http://www.phlebology.com.au/forms/detail.aspx?DocID=tking&OtherSpecialties=&ServicesPerformed=


Dr Alan Kanter
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NHE
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PostPosted: Tue Jun 02, 2009 9:54 pm 
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Hi Cure,
Quote:
The URL's below gave me problems, and the quote was the only way to keep them together.

URLs with a space in them need to have the characters "%20" wherever there is a space in order for them to work correctly. Essentially, %20, is the html equivalent that defines a blank space in a URL. See the last URL you posted which I have edited for an example. Note that you may need to go into editing the message in order to see the URL with the %20 included with the URL.

I hope this helps, NHE
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notasperfectasyou
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PostPosted: Wed Jun 03, 2009 6:32 am 
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NHE wrote:
URLs with a space in them need to have the characters "%20" wherever there is a space in order for them to work correctly. Essentially, %20, is the html equivalent that defines a blank space in a URL.


This new learning amazes me, Sir NHE. Explain again how sheep's bladders may be employed to prevent earthquakes.

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CureOrBust
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PostPosted: Wed Jun 03, 2009 7:37 am 
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this is embarrassing :oops: :oops: :oops: that is my "day job" (not the sheeps bladders) ...
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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