Sharon at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Sharon at Stanford

Postby Needled » Mon Jun 01, 2009 6:35 am

Hey Sharon, I saw you posted over the weekend on The Experience Project while this site was down, and I figured you’d be busy all day today at Stanford. I just wanted to wish you well and let you know I'm thinking of you. Please let us know how you’re doing when you have time.
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Postby mrhodes40 » Mon Jun 01, 2009 6:39 am

Ditto SHaron good luck to day thinking of you !! I can't wait to hear what is up with you!
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby cheerleader » Mon Jun 01, 2009 7:07 am

Morning, Sharon!
It's a good day in Palo Alto :) Hope you have a nice breakfast and relaxing morning before heading to Stanford. So glad TIMS is back up for your report! Thinking of you and sending all good wishes,
Cheer and Jeff
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Jamie » Mon Jun 01, 2009 7:32 am

Good luck!

I am VERY interested in all this.
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Postby alta » Mon Jun 01, 2009 7:42 am

Good luck Sharon. Will be thinking of you.

All the best,
Alta
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Postby Loobie » Mon Jun 01, 2009 8:52 am

You know I'm pulling for you! Here's to blocked azy's (from another spinal MS'er :D )
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Postby whyRwehere » Mon Jun 01, 2009 9:04 am

I'll jump on the bandwagon of well wishers and curious onlookers....thank God TiMS is back, I was checking all the time.....definitely was done to stifle the news!
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Postby Jamie » Mon Jun 01, 2009 9:12 am

hahaha, I said that to the Mrs!

CCVI comes out on TIMS and sudden virus takes out the site?

Coincidence???
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Postby Arcee » Mon Jun 01, 2009 11:28 am

Sharon, am thinking of you as well and looking forward to your thoughtful posts from Stanford. Hoping you have satisfying time there...
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Postby IHateMS » Mon Jun 01, 2009 4:05 pm

good luck
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Postby Sharon » Mon Jun 01, 2009 8:24 pm

Hey all! Thank you for your kind words, thoughts and prayers. It is kind of late and it has been a long day, so this will be ashort post.

The tests are in - I have a blocked left jugular - 99% blocked. Right jugular is okay. Dr. Dake thinks he sees something in the asygous, but is not for sure. He will check it out tomorrow when he does the stent placement in the left jugular.

I have talked with Holly (Peekaboo) today - she starts her tests tomorrow-she has access to a very old and slow computer, so I told her that I would check-in to TIMS for her. She is ready to get going with the program.

Tomorrow I will be at the hospital at 6:30am. I am saying good night - I'm tired - will try to update you tomorrow.

Sharon
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Postby cheerleader » Mon Jun 01, 2009 9:09 pm

Sharon wrote:Hey all! Thank you for your kind words, thoughts and prayers. It is kind of late and it has been a long day, so this will be ashort post.

The tests are in - I have a blocked left jugular - 99% blocked. Right jugular is okay. Dr. Dake thinks he sees something in the asygous, but is not for sure. He will check it out tomorrow when he does the stent placement in the left jugular.


WOW. Thanks for checking in, Sharon. Know it's been a long day. Will be interesting to see if anything is found in the azygos as he goes thru there....we'll be praying for smooth sailing and an easy procedure tomorrow.

I have talked with Holly (Peekaboo) today - she starts her tests tomorrow-she has access to a very old and slow computer, so I told her that I would check-in to TIMS for her. She is ready to get going with the program.

Tomorrow I will be at the hospital at 6:30am. I am saying good night - I'm tired - will try to update you tomorrow.

Sharon


Good night Sharon. Send regards to Holly, Andrea and Dr. Dake from Jeff and Joan. Get some sleep-
all the best,
Cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Needled » Tue Jun 02, 2009 4:33 am

Whoever thought it would be good news that your jugular is 99% blocked???? I'm still not sure it's exactly good, but it is amazing. Off to work now, but just wanted to check in. Thanks for the update.
And please give our regards to Holly as well. Here's to hoping her problem is found, too. :)
N
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Postby coach » Tue Jun 02, 2009 8:06 am

Good luck Sharon. Thoughts and prayers are with you.Waiting to hear about your experience.
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Postby Jamie » Tue Jun 02, 2009 10:33 am

This is unbelievable.

Cause or effect, I guess we'll find out - but the evidence is mounting.

Sharon too, Holly will find out today.

Jeez.

99% blocked - its a wonder you could lift your head!
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