Holly at Stanford
Holly at Stanford
Hi Holly, Your turn today! Sharon said you had an older computer and she would be checking in for you, so I wanted to make sure have your own cyber waiting room filled with good wishes for you. Good luck with your tests. Here's to Dr. Dake finding your problem and fixing it. We'll be waiting anxiously to hear from you.
N
N
- CureOrBust
- Family Elder
- Posts: 3374
- Joined: Wed Jul 27, 2005 2:00 pm
- Location: Sydney, Australia
Holly you are in our thoughts and prayers...every minute goes by thinking of you and your adventure!
marie
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
- notasperfectasyou
- Family Elder
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- Location: Northern Virginia
- Contact:
Holly,
Best of luck and remember we are all excited to hear about your experiences. Prayers are being said for you!
Cat
Best of luck and remember we are all excited to hear about your experiences. Prayers are being said for you!
Cat
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
Hi guys...I am truly thankful for all your comments and this wonderful forum on TIMS. I have a copycat dx aka double jug high up just like marie and jeff. Talked extensively w/ Dr. Dake have lots to share... I want to gather my thoughts so I can share inan organized manner...
I may have trouble in SSDI funding for the op that was to be today..Dr.D is going to call my provider today directly and see what he can do. may have to wait and try again...good thing AZ to CA is not an expensive trpip and I have my sistre Trudy as room and board...
more later. Holly
I may have trouble in SSDI funding for the op that was to be today..Dr.D is going to call my provider today directly and see what he can do. may have to wait and try again...good thing AZ to CA is not an expensive trpip and I have my sistre Trudy as room and board...
more later. Holly
- cheerleader
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- Location: southern California
Holly...
If anyone can figure out a way to get SSDI to pay for your surgery, it will be Dr. Dake. I am so sorry that you can't have this taken care of right away, but I trust that this will be in your future, and will pray for you (as I know many others are) I hope it was an answer to your search to find your jugular blockage, and to see something that can be repaired in your body. And am also glad that you have family in CA and a support system. Hang in there, and stay strong, Holly-
all the best,
cheer
If anyone can figure out a way to get SSDI to pay for your surgery, it will be Dr. Dake. I am so sorry that you can't have this taken care of right away, but I trust that this will be in your future, and will pray for you (as I know many others are) I hope it was an answer to your search to find your jugular blockage, and to see something that can be repaired in your body. And am also glad that you have family in CA and a support system. Hang in there, and stay strong, Holly-
all the best,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
Wow holly! The same thing? geez. But everyone has something blocking hteir venous system just as Dr Z predicted. that is interesting. can't wait to hear what you can feed back in terms of what you learned.
Everyone askes differnt questions and we all gain from that sharing after the fact. Can't wait to hear your input after you get your thoughts organized.
marie
Everyone askes differnt questions and we all gain from that sharing after the fact. Can't wait to hear your input after you get your thoughts organized.
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
I telephoned Holly's sister today to see how Holly was doing. Holly is okay and actually was at the airport waiting for her plane. Her sister said she ended up having a jugular and an asygous vein repaired. I was surprised to hear that bit of news. Things must have changed in the procedure. This should be an interesting story.
Sharon
Sharon
Oh man, home TODAY??? good grief everyone pray for that brave lady how on earth can she do that?
I am so interested inher story............azygos wow! that is expected I would think given her history.
gee thanks for posting Sharon..
marie
I am so interested inher story............azygos wow! that is expected I would think given her history.
gee thanks for posting Sharon..
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics