Holly at Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Holly at Stanford

Postby Needled » Tue Jun 02, 2009 5:43 am

Hi Holly, Your turn today! Sharon said you had an older computer and she would be checking in for you, so I wanted to make sure have your own cyber waiting room filled with good wishes for you. Good luck with your tests. Here's to Dr. Dake finding your problem and fixing it. We'll be waiting anxiously to hear from you.
N
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Postby CureOrBust » Tue Jun 02, 2009 7:51 am

best wishes holly. 8)
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Postby alta » Tue Jun 02, 2009 7:54 am

Good Luck Holly, hope all goes well.

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Postby mrhodes40 » Tue Jun 02, 2009 8:37 am

Holly you are in our thoughts and prayers...every minute goes by thinking of you and your adventure!
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Arcee » Tue Jun 02, 2009 10:57 am

Holly, thinking of you and hoping your time at Stanford is so very positive.
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Postby LR1234 » Tue Jun 02, 2009 12:42 pm

Looking forward to hearing from you Holly! Hope all goes well xx
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Postby notasperfectasyou » Tue Jun 02, 2009 12:58 pm

Holly, our thoughts and prayers are with you. Ken
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Postby catfreak » Tue Jun 02, 2009 4:40 pm

Holly,

Best of luck and remember we are all excited to hear about your experiences. Prayers are being said for you!

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby peekaboo » Wed Jun 03, 2009 7:10 am

Hi guys...I am truly thankful for all your comments and this wonderful forum on TIMS. I have a copycat dx aka double jug high up just like marie and jeff. Talked extensively w/ Dr. Dake have lots to share... I want to gather my thoughts so I can share inan organized manner...

I may have trouble in SSDI funding for the op that was to be today..Dr.D is going to call my provider today directly and see what he can do. may have to wait and try again...good thing AZ to CA is not an expensive trpip and I have my sistre Trudy as room and board...

more later. Holly
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Postby cheerleader » Wed Jun 03, 2009 7:20 am

Holly...
If anyone can figure out a way to get SSDI to pay for your surgery, it will be Dr. Dake. I am so sorry that you can't have this taken care of right away, but I trust that this will be in your future, and will pray for you (as I know many others are) I hope it was an answer to your search to find your jugular blockage, and to see something that can be repaired in your body. And am also glad that you have family in CA and a support system. Hang in there, and stay strong, Holly-
all the best,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby mrhodes40 » Wed Jun 03, 2009 9:00 am

Wow holly! The same thing? geez. But everyone has something blocking hteir venous system just as Dr Z predicted. that is interesting. can't wait to hear what you can feed back in terms of what you learned.

Everyone askes differnt questions and we all gain from that sharing after the fact. Can't wait to hear your input after you get your thoughts organized.
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Jamie » Wed Jun 03, 2009 9:26 am

Another one!

I can't wait to see the published data from Zamboni!
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Postby Arcee » Wed Jun 03, 2009 11:03 am

Holly, knowing what is going on is such a big step. I hope you get to take the next step as easily as possible.

And, not sure if someone already mentioned this, but we really ought to start a pool to bet on the #, location and % blockage of those of us who are about to go :D
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Postby Sharon » Thu Jun 04, 2009 1:23 pm

I telephoned Holly's sister today to see how Holly was doing. Holly is okay and actually was at the airport waiting for her plane. Her sister said she ended up having a jugular and an asygous vein repaired. I was surprised to hear that bit of news. Things must have changed in the procedure. This should be an interesting story.

Sharon
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Postby mrhodes40 » Thu Jun 04, 2009 1:30 pm

Oh man, home TODAY??? 8O good grief everyone pray for that brave lady how on earth can she do that?

I am so interested inher story............azygos wow! that is expected I would think given her history.

gee thanks for posting Sharon..
marie
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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