Diagnosis: Probable MS 2/03 and RRMS 4/08 - at age 48
Lesions: multiple brain lesions, 8 or so, small, round and scattered
Symptoms: constant headache, ringing and buzzing in left ear, severe fatigue, bowel issues, depression, constant twitches in legs and occasionally in arms and hands, daily numbness and tingling in feet, legs, arms and hands, left hip pain, slight left foot drop when fatigued, severe heat intolerance, severe brain fog, problems with processing, memory and speech, itchiness on face and head and overall I just want to get out of this body that has betrayed me.
EDSS: 4 - self assessment test at Dr. Dake’s Office
Treatments: Tysabri Infusions every 4 week, could not tolerate Rebif side effects
Diagnosis at Stanford: 9/09 CCSVI- Left jugular vein occluded with many small collateral veins, right jugular occluded by an Arachniod Tissue Cyst in the Sigmoid Sinus. Occluded left jugular carrying all the blood flow
Treatment: 9/09 1 stent on left side, 1 on right side and balloon where left and right jugulars meet in upper chest
3 days after procedure: ringing/buzzing in left ear is gone or at least a lot better. Blood Pressure was 130/88 with a BP pill daily. Now it is 117/77 with no BP pills at all.
More to come......
Last edited by catfreak
on Tue Sep 08, 2009 12:43 pm, edited 1 time in total.
Holly - Shine On You Crazy Diamond - Pink Floyd
9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.