This Is MS Multiple Sclerosis Community: Knowledge & Support

Marie - what is lumen? ][/quote]maybe losing only 50% of the lumen is manageable for the body, but beyond that it starts to [quote]

I am not understanding - DUH!

Lumen is the thickness of the middle of the vein like the inside diameter of a pipe.........Sharon the lumen on yours was 99% occludes on one side.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

Thanks Marie.

Okay - So, Dake talked briefly in his hypothesizing manner ...he said that if my MS was genetic (which he would tend to lean towards since I have a brother with MS), the blockage would not have been as large nor as occluded at an early age. As you age, your lifestyle, your environment, your health have an affect on your body. These things might delay or they might speed up the occlusion process. Again, he was not stating this as fact - he was just talking.

But you know the best ideas come out of "brainstorming" where in the people in a company all join a room where the thinking is no holds barred free flow of ideas and let the thought go where it wants to....

I think a little less dogma and a little more brainstorm is good for this field of MS research, particularly before the ideas become gelled and dogmatic which seems to happen with time. I like the idea of Dr Dake speculating about childhood growth and how that might impact this overall, now is the time to consider these things.

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

My favorite part is dissecting old information with this new model in mind.



Put down the pipe and crack open a book.

Absolutely, Marie!! This makes sense with the early relapsing/remitting stage..where a high altitude vacation or stressful week or having a baby might constrict the lumen. A flare.
Then, the remitting period. A return to a slightly hampered venous system. Life goes on...the doctor tells you how lucky you are to be on Copaxone/rebif. Or, the lucky folks who have only a small bit of occlusion, (benign MS)- tell you it's because they drink red clover tea or wear crystals and they write and sell thousands of books to hopeful MS patients (Yes, Ann Boroch...that's you.)

UNTIL...the vein no longer remits and opens- due to age, repeated inflammatory damage, a move to Colorado, a bad case of pneumonia, you name it. Complete occlusion. What we call progressive MS. If it strikes the jugs, you have SPMS. If it strikes the azygos, you have PPMS.
This is all just rambling and surmising...but I really think this model makes more sense than anything else I've come across.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

123

Just wanted to chime in echoing Loobie's and Javaneen's points - - it's amazing to track these exchanges. So realistically helpful and encouraging in content and tone. I feel really fortunate to be able to follow along here.

Cheer wrote:



I am PPMS and unfortunately I have/had Jug and azygos occlusion...and my right jug has the beginning of walls thining w/o stent.

I too thinks this model makes sense and I talk freely about it to friends & family who know think the same. Just waiting anxously for healing or stabalization...

Smoking is one of the worst things a person w/MS can do. It totally changes the NO levels and causes vasoconstriction. (think: strokes, heart disease)


http://www.medicalnewstoday.com/articles/23178.php

the irony is, medical researchers could never explain why smoking was so bad for MS.....what does a cigarette have to do with autoimmunity? They said it showed "risky behavior" and smokers were more promiscuous and had more viral exposure (EBV, HPV) WTF???? But in the CCSVI model, the tie-in to vascular health makes complete sense...

cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

from HERE

The normal female body prepares for birth with coagulation being upregulated a little, if they don't they can get post partum hemmorhage a common cause of post partum death. (post partum means after birth)

The paragraph above comments on a couple of kinds of coagulation abnormalities. ecessive and hypo(meaning "less") active

Anyone see a connection there

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

123

It's true I read that as well........... HAH!

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics

The energy on this thread is palpable. I just love it.

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com

I was one of them, there smokers. I stopped when I was in my mid-thirties but that was after what I now think was an MS exacerbation. Glad that I stopped when I did - thank goodness for young children who were coughing in the the back seat of the car while I was puffing on a cigarette. It was because of the kids that I stopped---and oh, also because a pack of cigarettes was going to 90 cents and I didn't think we could afford it (my husband also smoked)...Times have changed --how much does a pack cost today $3, $4?

Sharon