Hi LR -
I also have a rather large cervical lesion at c4-c6; I have some brain lesions. Going back to 1991 I had my first instance of stubbing my toe (pre-footdrop). I was diagnosed in 2003. I went from a 0 EDSS to about a 1.5 to 2 over a period of thirteen years. Since 2003 I have slowly but continually declined - my EDSS was measured at 3.5 this past winter. Unlike Jeff, Marie, Holly and you - I have not suffered from the fatigue and the heat sensitivity. I thought that maybe it had something to do with having only one jug blocked, but Holly had only one blocked so I can't make a case: i.e. two jugs blocked = heat sensitivity, fatigue.
I was also on LDN (started May 2008) - I felt much better on the LDN which was probably because of the endorphins. I did notice a slight progression of weakness though, even while on the LDN. I quit taking the LDN before going to Stanford, because of the contraindication with pain meds. Dake's team mate Dr. Farzanegan asked me to stay off the LDN until my follow-up in August.
I hope they were able to scan a tad bit higher than the jawline - this would be where Jeff's and Marie's blockages are. Let's keep our fingers crossed that you get some answers. Each time someone goes in for a scan, we all wait to hear what the images reveal. Aren't we glad that we have a group here who get excited over such things?