bestadmom wrote:I just spoke with the research department at Jocobs Buffalo Neurologial Institute in NY and they are doing a 1000 person study of MS patients for CCSVI. It is not interventional but there is no charge to participate and get the needed tests.
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Thanks, Holly, this is great news. I know the head of the Institute there, Nick Hopkins, a neurosurgeon. I will call him and find out what they are doing, finding and thinking---and let you know just as soon as I have anything to report. I hope that as the temperature rises, that you will notice some improvement in heat tolerance compared to similar conditions previously. Keep communicating and enjoy the weekend.
bestadmom wrote:I just spoke with the research department at Jocobs Buffalo Neurologial Institute in NY and they are doing a 1000 person study of MS patients for CCSVI. It is not interventional but there is no charge to participate and get the needed tests. They have 250 people enrolled so far and need to get back to me in a few days to talk about how it works, scheduling, etc. They are actively recruiting.
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