NHE sent you to the right place. Glad to see your name pop up, as I followed your journey with your husband Steve.
It is hard to quantify post-op results so soon. My husband Jeff is the farthest along at 7 weeks. His immediate changes were reduced fatigue and increased energy. He was never disabled, at a 1.5 EDSS, his issues were mostly brain related, with some bladder issues and leg pain and spasms. He still has these issues, but at a reduced frequency. We are hoping the stents will stop the assault of reflux and slowed perfusion in his brain- which was created by his closed up jugulars. He will have a new MRI on July 6, to see if there is any decrease in his lesion load, or healing. The patients' log will give you further info on the others.
I was hoping the patients' log would remain more informative and less chatty....but it's very tough to stop the back and forth, since this is such a new and exciting avenue. Perhaps it can be cleaned up and posted as a sticky once we have more concrete information. Good idea. And Dr. Dake will be writing up all of his findings for publication once he's completed his study. He is seeing more than just the TIMS gang.
Make sure to read all the papers in Marie's CCSVI research sticky, read the original CCSVI thread (all 50 pages- I'll bump it for you) -these are the essentials.
Wishing you and Steve the best,
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09