Alex...good thoughts going across the pond to you. Jeff developed those cluster headaches last fall and still gets them now and again, and he's figured out (for him) they're most likely related to posture and hydration. On days when he gets good water and doesn't crunch up his neck working on the computer, he doesn't get them. He didn't like the cervical collar so much, so instead he is constantly reminding himself to keep a neutral neck, no hunching. But those headaches hurt, and he sends his sympathy. If he gets them, he finds lying down relieves them pretty quickly. He goes for his one year at Stanford soon, we'll post if we learn anymore. Last checkup in November, the veins/stents looked great- and he was getting the headaches then..so who knows?
One thought I've had is that maybe the headaches are because now that your jugular veins are working well, the bloodflow and CSF are increased during the night, and then when you're upright during the day, the vertebral veins are not up to this new bloodflow? Might be something to ask the ultrasound doc. I know Mitch (enjoyingtheride) showed vertebral insufficiency as well as jugular, but Dr. Sclafani did not feel comfortable ballooning these veins. Could be like getting a minor lumbar puncture headache every day--due to changing fluid levels in the brain. It's a thought...and one I think will need more investigation. But I could be completely off-course...
I am so sorry this pregnancy has been harder than expected, and that you are dealing with the spasms again. No advice there, just sympathy and prayers. You are a trooper, and deserve all good things. Hang in there, and keep us posted. It's good to "hear" from you-
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09