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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby chrishasms » Thu Jun 25, 2009 1:24 pm

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Last edited by chrishasms on Sun Dec 06, 2009 11:36 am, edited 1 time in total.
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Postby Sharon » Thu Jun 25, 2009 3:25 pm

Chris - I feel better post exercise due to the increase of endorphins and because I practice good breathing techniques when exercising. If you are breathing deeply, (and stretching) there is an increase of venous blood flow. On the exhale the blood is draining through the veins.

Now symptom wise - if I am working out my legs ---Yes, I will get wobbly, but that is because of the muscles being tired

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Postby chrishasms » Thu Jun 25, 2009 3:30 pm

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Postby Sharon » Thu Jun 25, 2009 4:00 pm

What is worse? Do you have pain? As I said, after I do the leg press I have to be careful getting off the machine because my muscles are tired. I then go do some upper body workout and within a few minutes my legs are okay (for me - maybe not for someone who does not have MS). I guarantee you, I do not jump off the leg press machine like some do.
Today, playing golf my left leg got tired - it was not striding very well even with the WalkAide. But, after sitting down, getting something to drink and resting for a few minutes, I was good to go.

Really, Chris, ask your PT to help you with some breathing exercises. I think you will see a big difference. And, if you go to Stanford the breathing will help to get you clearer MRV images. :wink:
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Postby mrhodes40 » Thu Jun 25, 2009 5:15 pm

I agree with Sharon on this one. Breathe well and it improves the thoracic pump and increases drainage. Heat is an issue for people with MS too and metabolic rates go up and raise internal temperatures significantly. I think that is an issue for MS people. I was on the ellipse and did not get weak afterwards today... less heat issues for me now it seems after stents.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby peekaboo » Thu Jun 25, 2009 5:20 pm

my metabolic internal temp has messed with me. Is it ms or menopause?

i run hot internally ...
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Postby zap » Thu Jun 25, 2009 11:37 pm

I also run hot - especially at night. (I wonder if IBT helps with that too!)

Oh, and I'm 31 and a guy, so not menopause. Hopefully.
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Postby Sharon » Fri Jun 26, 2009 5:25 am

Holly, that is probably the $64,000 question - is it MS or menopause? Geez, we women have to deal with so much more than the men do :twisted:
Maybe once you get off the blood thinners, you might be able to take some of the natural supplements to help - I think black cohosh is one of them.

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Postby chrishasms » Fri Jun 26, 2009 10:43 am

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Postby zap » Sat Jun 27, 2009 10:26 am

Periodic hyperthermia and abnormal circadian temperature rhythm in a patient with multiple sclerosis (http://msj.sagepub.com/cgi/content/abstract/12/4/515)

I do think this heat thing is related - I wonder if the venous issues are related? Nighttime cooling depends on vasodilation (capillaries near surface work like a radiator) - when I heat up it doesnt matter what my surface is doing, fans, AC, etc - seems like I am trapping and building up heat in my core.[/url]
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Postby chrishasms » Sat Jun 27, 2009 12:52 pm

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