Marie (and/or any other medically informed person or dabblers), I've been googling to find a connection between Steve's hepatic lesions that are thought to be hemangiomas and CCSVI. Incidentally, he also has benign cysts in other abdominal organs (spleen, pancreas, kidneys). Also, he was born jaundiced.
Information on the causes of hepatic hemangiomas is fairly thin, but some sites I've seen cite the rare implication of inferior vena cava stenosis, and those implications mostly come indirectly from sites concerning Budd-Chiari Syndrome (which, of course we don't know that Steve has---if he does, it's so mild, it's asymptomatic). Stenosis of the inferior vena cava would also connect with the varicose veins/purplish red foot symptom.
Of course, these connections have to do with the inferior vena cava, not the superior vena cava which drains the jugulars and azygos veins, so perhaps I'm stretching into the territory of "venous squirreliness all round." Plus, there is much variation in the cardiovascular system from one individual to the next with lots of surprising anomalies. Some veins that ordinarily drain into one venous trunk might actually drain into a different venous trunk in a person with a squirrely venous system. Rare, but there.
I don't know if I'm trying to extrapolate too far or to contrive a connection that's too weak. Any enlightenment would be appreciated. My intention is not to hijack this thread, it's just that the posted articles have sparked my imagination.
Joyce (aka cypriane)~caregiver and advocate in Dallas for Steve (SPMS)----"Enter through the narrowgate..."