Stents get "endothelialized"--the "skin" of the vein grows over them and they become part of the vein. If they block up they can be restented--a stent inside a stent. After that if more is needed it is my understanding that a stent and the section of vein it has grown into can be removed in an open operation. BUT THESE ARE SURGICAL RISK QUESTIONS FOR A DOCTOR TO BE ASKED. IF YOU GET AN MRV THEN ARE CONSIDERING SURGERY THE DOCTOR IS THE PERSON TO DISCLOSE THESE THINGS!!
Considering these are permanent everyone needs to be fully informed, and as much as risks are not what we like to discuss, we need to balance that against the hopeful side. For me the decision was easy, but I feel I must stress that any forum is not the place to get your information regarding surgical risks. It may even vary for people with certain other diagnoses as well....
Jeff got through airport security no problem they are pretty small, but I have a card in my purse that says what kind of stents I have from the hospital, so if I needed to I could show that. Apparently not everyone got one of those....I got it in my discharge papers from the nurse on the floor.
I personally still feel the after food slump somewhat, and I still get tired enough to want a nap during the day, but I feel more refreshed after I rest and I have periods of time when I feel really awake and ready to go--I used to feel pretty wasted all day and never had a moment where I felt really good. These things are about half what they used to be.
fingers, eyes, legs, l'hermittes etc-the only thing that will make a difference is HOW YOUR PERSONAL NERVES ARE. No one can answer that for an individual pre surgery, are the axons transected or is the area just demyelinated and inflammed? If it is the latter you may see improvement. This is not going to restore damaged/transected nerves
That is just not a reasonable expectation.
People will not go back to how they were before MS either unless they are very newly diagnosed. That is a hard statement but we HAVE to be realistic. My improvements are really minimal--but then I am really progressed too and ANY improvement is important to me.
Heat intolerance is better and I also am more comfortable in the cool--I used to want to KILL the other idiots in the car--didn't they see it was too cold for windows down? Didn't they realize the heat should be ON?
That is gone I can be in the car at the same temp as other people. No humidity in WA.
I have spasticity and it is better, though not gone. I have reduced my baclofen and will try lowering it more too....stay tuned. I have 4AP but rarely take it before the surgery. I will be trying it after I am off the coumadin--I'm not messing with anything now.
--hard to believe but-- Jeff was treated 2 months ago, I was treated 7 weeks ago.... A lot is still not known about how we will do longer term.
I hope that helps
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
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