This Is MS Multiple Sclerosis Community: Knowledge & Support

The cost of LDN is £15 per month payable to the pharmacy. There is a £10 admin charge for a private script. This is payable to the clinic monthly until you find your optimum dosage. Thereafter it is only payable every quarter as a three month prescription can be arranged. It will still be sent out monthly from the pharmacy.
There is a offical LDN website

T3/T4 these numbers depending on them may give reasons to look further into Hosimotos/graves desease again thyroid connection.

CD,s well Ive asked EHClinic do we get this and their not sure of the answere as they are still in training and do not have all the answeres....

Are you going to go to Scotland ?

I'm looking into it...but I'm thinking Costa Rica now.....

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35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos

Wow. So I just recieved confimation. I can go to Costa Rica July 12th for liberation.

I would be super excited because I thought my hubby would be too. But he wants to "whoa....wait a minute"........he was of the impression that I should get my Thyroid nodules looked at and hopefully removed first in case THAT is the reason my jugular veins show a "moderate" narrowing.

Bummed out right now.

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35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos

I kind of agree with him, ... it is hard to know what causes what...

Yes...after discussion it does seem the right thing to do.

I called the Diagnostic Imaging Department Booking Desk and asked to be put on a cancellation list. I am also seeing my GP tomorrow to see if this could be a high priority.

Will keep you informed!

-VM-

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35 (f) dx'd since July 2000 RRMS
Treated in Bulgaria on September 8 2010
80 percent narrowed RJV and 90 percent narrowed Azygos

THIS IS AN OLD THREAD ... but it started with some interesting information from Marie about the thyroid.

I wonder how many people with MS have thyroid issues and don't even realize it. Everything gets lumped in with the MS.

As for Campath increasing thyroiditis to 20%, is that our collaterals that drain through the thyroid when the jugular(s) are blocked cause slow drainage of any toxins there, and the Campath builds up and does damage?

When I had my original treatment in March/11 I wasn't told of any thyroid issue. When I went to see Dr.S in August I had two small nodules on the right lobe of my thyroid. My GP sent me for a follow-up u/s in November and I now have 3 nodules. The largest is 6 mm and that isn't considered to be a risk, they are cysts. All on the right side which is taking as much blood flow as possible. The lijv is totally occluded and the rijv is approx 80% occluded.

My Hashimoto's was caught by my new doctor recently. (the tests all showed a problem for years, but no one ever looked into it) I have been treated for CCSVI and I still have the thyroid problem. I wonder if this is permanent damage? Maybe after diminished blood flow for an extended period of time, the function is permenantly altered?

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Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.

Hashimoto's is a true autoimmune disease, as I understand it. There are anti-thyroid-components antibodies in the blood.

I could see arguments for either way: once triggered, the autoimmune disease is unleashed and there is no turning back the clock. (This is a frightening scenario with MS as an autoimmune-disorder-triggered-by-CCSVI too. The lack of autoimmune antibodies in MS is a difference, though.) OR, once the CCSVI is successfully treated, the thyroid would get healthier and the immune system would no longer attack it.

Have you had any MRIs or dopplers done that show if there are still large collaterals running through the thyroid? Am I remembering right that you had a renal vein ballooned but not stented? If ballooning is not successful against a compression, then there might still be an untreated CCSVI issue there.

Similarities and a question.
MS and Thyroid? I have been reading that treatment of low thyroid conditions have an incredible effect on minimizing MS symptoms. Night sweats, depression, sensitivity to cold, trouble dealing with heat, fatigue, tremors, cognitive issues, irritability, are all attributes of low thyroid and MS.
More women have low thyroid than men which is the same attribute for MS. Marked changes in thyroid function occur during puberty as an adaptation to body and sexual development. Is this why MS develops after puberty? Low thyroid is an auto immune problem and hormonal. How much testing is done for thyroid on patients with MS? Again, I think the fact that both MS and hypothyroidism occur mainly after puberty and both effect women more should be enough to wonder why this may be. It has been noted that diet may be at play here in areas where natural iodine levels are deficient in soils and the foods/ milks that are consumed. Iodine is an essential element that enables the thyroid gland to produce thyroid hormones and if this is deficient then the expectation that normal body function is also deficient goes without saying. Is there any regulation that dictates how much natural iodine is in our diets? One study done in 1998 found that over the past twenty years, the percentage of Americans with low intake of iodine has more than quadrupled. That is noticeable and to be expected considering the effects of what over farming a field can do to the mineral content of that soil. From what I have noticed of thyroid testing in blood, it is not the absolute diagnosis. Look for alternatives such as Basal Body Temperature testing before ruling it out.

I was not tested by my neuro for thyroid issues, but had it tested by my GP on my request, and it came out OK. I do however worry about my iodine uptake, as although (maybe because) I eat healthy, I do not use much salt (which is normally fortified with iodine), and even if I do, I end up using sea salt which is not fortified with iodine.

I had my thyroid function tested, as I almost hoped it was a little low, so I could try boosting my levels with meds.

My basal body temp is OK, but I am VERY sensitive to the cold, and not so much to heat as most MS suffers are.

as far as getting a really accurate thyroid test i think is tough. they have these levels etc. they go by and as with say your levels of iron again they use set standards. but do all these levels apply to each of us? again, we are individuals here and mainstream has been ignoring that for a long over due time.

a perfect example--if anyone here happened to watch OPRAH a while back when she was having health problems. a viewer voiced that she felt OPRAH could be having thyroid issues. even though oprah had been cleared on that she sought out thyroid specialists and the "4th" one caught it and got her
staightened out.

of course OPRAH'S money and resources is out of my league and most. but, it goes to show if 3 out of 4 were wrong with her--what about the rest of us?