Well, Here I am just beginning my own post 8 people down! I am overwhelmed with the love and concern you all show each other and me. Thank you so much. All the information has been very helpful in gearing me up mentally and emotionally for this decision and the guts to do it. You're all so smart and informed, and speak so well. I understand most of it because I was in nursing at one time, but it will take time to speak intelligently on this subject. I have not been able to spend the time that I need to study, but I will. I will post all of my experiences and every little change I have in the future, (that is if I have Stenosis.) Actually I have written 3 posts, I lost one before I could post it, darn, and didn't like the others and never found the time to redo them. Mrhodes took the bull by the horns for me! And started this post. Marie, I am so lucky to have you as my friend.
Cheerleader, I would love to meet you in Stanford and thank you in person for all your work, but I am flying in at 9pm on Monday so I will just miss you and the others. Are Jamie and Mel going to be at Stanford on Tues?
Skydog, I can't thank you enough for your advice. I will do every thing you ad viz. I hope that your healing is fast and amazing. I have been in the eye of a family hurricane and then my son's fiance thought I was doing the food for their wedding reception the 24th of July! Oh boy! Your advice has helped me to begin to focus of this surgery.
Here is a list of my symptoms right now as I head to Stanford:
I always have neck pain at night when I lie down. Most of the time I have to sleep sitting up or have my head elevated. I can't sleep more than 4 hrs at a time. I have regular spasms day and night, four to six spasms of serious pain during a twenty-four hr period. These spasms are sometimes debilitating like migraine headaches, my teeth even hurt which last from 25mins to 1-1/2 hrs at night. I hear some people have no pain with MS, not in my case. Although I believe I am in remission. My last Neuro thinks the pain is not from the herniation, but does not have a clue as to what it is.
He found 6 new lesions and wanted to change my medication from copaxone to Rebif. That almost killed me, my heart went nuts so I quit one wk into the 44mg dose. Since the Rebif my brain fog has increased. I also have a notable throbbing ache behind my ears and an increased headache overall as well as neck pain. I feel as though I am getting worse.
I also tried Tramadol for one month to see if it would ease my pain. I was wild with pain at the end of the perscription. I think that the Tramadol slowed my circulation and made my condition worse. I quit the drug and I got better, or went back to my previous condition. I really do think this is all circulation related.
This note is way too long, so I'll write more tomorrow if I have any questions. And thank you again for every note of encouragement. It really means a lot to me Islangirl