, my concern is that the same processes that initially, gradually led to the veins developing stenosis will continue to stress the stent site - and cause problems sooner or later - is this a valid concern?
I believe it is a valid concern though I am not a doctor to judge it all in depth. I will ask Dr Dake about it on the return trip. but THAT is why I have said several times that if I were a person very early in disease and if my EDSS was really low and I was not moving quickly progression wise I would wait for treatment; give it a year and let some more material come out before undertaking the responsibility of managing stents for life.
treatment is likely to evolve a little with time and certainly things are learned with each patient treated. First patients often do not get what later patients do. Protocols and regimens develop with time.
Some of us can't wait though and we have to go with what is right now. Dr Dake is one of the leading endo vascular doctors in the country though and seeing him I felt comfortable that I was getting state of the art for what is available now. I have to go now or have nothing to save personally so, I went.
That having been said those of us who have been treated will be monitoring our stents and making sure they stay patent. Dr Dake asked me to find a local interventional radiologist to follow up with over time, probably a couple times a year get an MRV to see what is up with the stents. I believe that if any exacerbation or any new symptoms seem to happen I'll get in for a stent check....NOT steroids! well, then again maybe I'd get steroids too I do not know........its new!
And with regards to the stent procedure itself I think it makes a difference what kind of pathology you have. My high jugular stents and the compressed tight tissue that is collapsing the jugular is a different kind of thing than an atresia or stenosis.
Atresia is a blockage that you could take out or repair, stenosis is a hardened and or narrowed area. Stenosis is really ideal for a stent, but stents are also used commonly if you have let's say a tumor that is closing up a vein or something, so it is a common use of a stent to use it to push back other tissue so a vein stays open. That is what they are designed for.
Veins do tend to plug back up I was told by the local university professor who did my dopplers initially and they often need to be redone. The slow passive flow of the veins allows the blood to sort of sluggishly move past the repaired area so they can develop issues more easily than pulsing fast flowing arteries. Wobbly received repairs not a stent to his vein, and he was told they did not know if his repair would last 6 months or 6 years.
But to me if this is what is needed to fix this disease, so be it. I'm all in. My MIL has all kinds of cardiac repairs bypasses etc. Many older people do, so these are not unusual measures.
of course we don't know for sure if this fixes it, but I feel good about the model and I believe personally it is correct about the cause of MS. I am making that statement ahead of scientific certainty but I believe it anyway personally...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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