Mel & Jamie's ongoing Stanford experience post!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby peekaboo » Thu Jul 23, 2009 1:18 pm

I would PM Cheer and Marie
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Postby cheerleader » Thu Jul 23, 2009 1:48 pm

MaggieMae wrote:Need to find this answer quickly and I tried to use the search but wasn't having much success. I'm trying to reschedule my husband's MRV and the hospital just said they have never done an MRV of the neck. Should that be with or without contrast?


The only way to do an MRV and see the veins in the neck and how they are working is with a contrast dye. The techs will know that, MM.

Hope Mel is having another action-packed day!
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Jamie » Tue Jul 28, 2009 8:57 am

3 weeks since surgery, everything is great.

No MS symptoms to report, energy and heat tolerance remain normal.

Blood was too thin at 3.00, cut back on the coumadin for a while, tested again next week.

LOTS of little bruises all over her body.

We are now even thinking of taking a trip, just an impromptu weekend away - something she'd not have considered a month ago. Weekends were for sleeping.
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Postby Loobie » Tue Jul 28, 2009 9:48 am

Jamie wrote:We are now even thinking of taking a trip, just an impromptu weekend away - something she'd not have considered a month ago. Weekends were for sleeping.


Now THAT'S some good news!
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Postby Ernst » Tue Jul 28, 2009 10:14 am

Jamie wrote:3 weeks since surgery, everything is great.
No MS symptoms to report, energy and heat tolerance remain normal..


Very nice to hear, I'm happy for you! Looks like your life has changed totally and surgery has been really succesful. Must feel like a miracle, after all ms symptoms.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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Postby Jamie » Wed Jul 29, 2009 9:37 am

It does feel like a miracle mate, yes.

I think I'm the only atheist on TIMS though!
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Postby schnittke » Thu Jul 30, 2009 5:49 am

Your not alone.
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Postby bestadmom » Thu Jul 30, 2009 7:28 am

I'm with you too.
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Postby chrishasms » Thu Jul 30, 2009 7:33 am

123
Last edited by chrishasms on Sat Dec 05, 2009 6:51 pm, edited 1 time in total.
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Postby cheerleader » Thu Jul 30, 2009 7:52 am

pssst....Chris...your heart's in the right place, but not here, seriously...
you'll start a smack down on the thread
xoxox,
cheer 8O
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby chrishasms » Thu Jul 30, 2009 9:13 am

123
Last edited by chrishasms on Sat Dec 05, 2009 6:51 pm, edited 1 time in total.
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Postby guitarguy » Thu Jul 30, 2009 12:01 pm

chrishasms wrote:I got a book you can read by an atheist that will prove to you Christ existed! He was incredibly upset because after all his research he couldn't say there was nothing out there. I was atheist until I read that book. Now I realize it's more impossible to be atheist than to believe in a God. The man actually uses math and science to prove it too.

Lee Strobel
http://www.amazon.com/Case-Christ-Journ ... 0310209307

I am not necessarily trying to change your minds...I just think if you really want to be atheist you should have all the facts and this book gives it.






I am not an atheist but Strobal is a business man and a con artist, he realized there was money too be made in the world of religion.

If you are looking for a story filled with powerful characters from warriors and kings to a talking donkey and a parthenogenesis zombie than this is a story for you! The plot keeps you on your toes and I enjoyed this psuedo historic work merged with fantastic mythology that really brings out an aura of mystical feel to reading it. Some parts are abit choppy but other than that it is right up there with Lord of the Rings.
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Postby cheerleader » Thu Jul 30, 2009 12:47 pm

oy vey...
can I please request we give this thread back to Jamie and Mel?
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Jamie » Thu Jul 30, 2009 7:09 pm

Dudes, seconded.

Sorry I mentioned it.

It was just me being amused by the term miracle when I don't share those beliefs.

Jesus, Jehovah, Muhammed, Buddah y'all are cool with me. Peace.

No harm no foul chaps.

In other news, OUR A/C IS BROKEN.

Ooops.

Let me change that.

Our a/c is broken.

No need to capitalise because its not that big of a deal now. No shit, I am feeling worse than Mel is in this.

Its 90 degrees, 70% humidity at 9pm. Welcome to Houston.

If our a/c had broken BD*, we would be in a hotel now 100% for sure and Mel would be messed up with double vision and severe fatigue for several days even back in the a/c at said hypothetical hotel.









*Before Dake.
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Postby Ernst » Thu Jul 30, 2009 11:25 pm

With word miracle I just meant "something that is hard to believe" or "too incredible". So nothing to do with religion :D I'm sure that I will write even more amusing words in the future or you can try chat with Finnish language with me :D


ps. just kidding... You can also use swedish with me
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8

Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
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