Mel & Jamie's ongoing Stanford experience post!
Jamie!
Yes, I know that it wasn't about insulting - this was just some funny staff with words and meanings. But really, I have to concentrate with my english and all the time I'm thinking "is this the right word?". Sometimes I even ask my wife that are my senctences and words correct. Reading english is bit easier but writing...
But lets forget all this word staff and concentrate to CCSVI - and I always read very carefully all your comments. This is so INTERESTING. Then I tell these things to my wife with ms. And then I tell biggest news to Finnish ms-forum.. and spread the word and sing like canarian-bird about these things here.
Yes, I know that it wasn't about insulting - this was just some funny staff with words and meanings. But really, I have to concentrate with my english and all the time I'm thinking "is this the right word?". Sometimes I even ask my wife that are my senctences and words correct. Reading english is bit easier but writing...
But lets forget all this word staff and concentrate to CCSVI - and I always read very carefully all your comments. This is so INTERESTING. Then I tell these things to my wife with ms. And then I tell biggest news to Finnish ms-forum.. and spread the word and sing like canarian-bird about these things here.
My wife's 3 yrs post video: http://www.youtube.com/watch?v=eLeqLps8XR8
Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
Our family: http://www.youtube.com/watch?v=p_QCKxeQAlg
5 weeks out and all is great.
Mel went to an outdoor funeral in 100 degree heat and people were really suffering and she was hot but fine.
no double vision at all.
she could also lift her baby nephew and not get exhausted after an hour of looking after him.
Mel has made a complete recovery from the surgery and feels nothing and has made a full return to 'normal' as far as she knows with regards to her MS.
She needs an EDSS doing again in a month or so, it was 1.5 before this with clonus in her left leg and hyper reactions on left arm.
our inexpert test show that its gone completely. Her left foot naturally rests on the ground like her right foot rather than pointing up, tensed at 'rest'.
We've had the best outcome possible from this and are so lucky.
Mel went to an outdoor funeral in 100 degree heat and people were really suffering and she was hot but fine.
no double vision at all.
she could also lift her baby nephew and not get exhausted after an hour of looking after him.
Mel has made a complete recovery from the surgery and feels nothing and has made a full return to 'normal' as far as she knows with regards to her MS.
She needs an EDSS doing again in a month or so, it was 1.5 before this with clonus in her left leg and hyper reactions on left arm.
our inexpert test show that its gone completely. Her left foot naturally rests on the ground like her right foot rather than pointing up, tensed at 'rest'.
We've had the best outcome possible from this and are so lucky.
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Jamie,
I am so happy for you guys!! What a great outcome! IT seems that early MS especially is well treated this way. Is Mel on copaxone?
Mel's reports are important for all of us. In his interview for the Charing Cross symposium Dr Zamboni mentioned that early MS is especially well treated which makes sense because the lesions are more likely to be inflammation and demyelination which can heal. If you had to "prove" this by my improvements in function it would be impossible to show anything because I am a veteran of MS at 18 years and my "many scars" are all scars! It is harder for those of us in this boat to have a personal affirmation of success.
But knowing that Mel feels that much better gives me a really good feeling . Her success feels like my success too.
Thanks Jamie for sharing!
I am so happy for you guys!! What a great outcome! IT seems that early MS especially is well treated this way. Is Mel on copaxone?
Mel's reports are important for all of us. In his interview for the Charing Cross symposium Dr Zamboni mentioned that early MS is especially well treated which makes sense because the lesions are more likely to be inflammation and demyelination which can heal. If you had to "prove" this by my improvements in function it would be impossible to show anything because I am a veteran of MS at 18 years and my "many scars" are all scars! It is harder for those of us in this boat to have a personal affirmation of success.
But knowing that Mel feels that much better gives me a really good feeling . Her success feels like my success too.
Thanks Jamie for sharing!
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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