This Is MS Multiple Sclerosis Community: Knowledge & Support

Jamie -

Has Mel had the OCT test? If she needs to see her optician anyway, might I suggest she schedule an OCT test for baseline measurement.
The OCT is being used to measure the shrinking of the brain in MS.

Sharon

Sharon, yes she's had several of those during and after HiCy.

She fortunately has no brain atrophy over that period.

Good results on the OCT! I also have had no brain atrophy -makes you feel like you have won at least one battle with MS.

Glad to hear that Mel is back to work - she's amazing...doesn't skip a beat does she?

No she doesn't!

Also, she's not needed a provigil since after the surgery! That's been keeping her going the last month or so but she's awake without it now.

Long may it continue.

You're right about the atrophy though, its good that they can measure it at least, bad that there's bugger they can do about it though.

Hopefully a combination of HiCy early on and now this should help to keep things at bay, its crazy to think she's only been diagnosed two years and has done Rebif, HiCy + Copaxone and now venous intervention.

Surely that's enough to knock this bastard of a disease down.

Hopefully.

Feeling good today.

Pain has subsided a lot so has stiffness, that meant she got a good nights sleep last night for the first time in a while.

Full day at work today and very alert now.

Left sided pain and tingling still absent.

WOW

Also she is HUNGRY.

I mean she'd eat but with no real hunger/joy in it.

New contacts today and stlll blurry vision...

Emailed Dr. Drake today to see if she should wait until things settle down or see the neuro-opthamologist.

A psychologist might want to weigh inon that ie depressions may have dampened her zest before...

NOT ME! man, this is physiological. She'll feel great....

wishing you more and better......

ps: me too on med changes. Don't need as much

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I can't put my finger on it, but I do not enjoy eating as much as I have in the past. I personally think a lesion has numbed my taste buds slightly, but that's pure speculation.

I have lost my taste buds...happened when my tongue lost sensation
Everything tastes bland to me now:(......still love food though!!!

Do you think that Mel's eyes are blurred because the pressure change has altered her eyesight?

Has she always had visual problems and had to wear glasses?

L

123

Leanne,

Yes she's always had poor eyesight, most of her family do.

I'm thinking a pressure change is the difference for sure.

Cheers,

Jamie

Feeling good today.

Stopped the advil even, energetic and wide awake!

Man I love reading these kinds of things as I am still in recovery mode and can't hardly wait to see if I feel better. I'm glad she's continuing to do well.

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Saturday morning, Mel is up at 9:30.

Full week at work and went to bed last night at 11 with no nap.

Awesome.

I'm not is such good form, heavy session yesterday and I'm in trouble today