Mel & Jamie's ongoing Stanford experience post!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Mel & Jamie's ongoing Stanford experience post!

Postby Jamie » Sun Jul 05, 2009 7:51 pm

Does exactly what it says on the tin.

We head off early tomorrow morning, arrive at Stanford lunch time and have the scans in the afternoon.

We'll hopefully meet with Dr. Dake after that and IF (!) stenosis is found she'll be treated the next day.

I'm taking my computer so I can keep up with work so I'll keep everyone posted as to our progress.

Wish her luck!
Last edited by Jamie on Wed Jul 08, 2009 7:19 pm, edited 1 time in total.
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Postby LR1234 » Mon Jul 06, 2009 2:17 am

Good Luck Mel and Jamie! x
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Postby peekaboo » Mon Jul 06, 2009 5:06 am

Jamie & Mel -

Wishing the best, will look for your posts

Holly
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Postby javaneen » Mon Jul 06, 2009 5:36 am

Good Luck! Safe travels! I can't wait to hear the news!
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Postby Loobie » Mon Jul 06, 2009 6:09 am

Bona Ventura! I'm right behind you guys!
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Postby Jamie » Mon Jul 06, 2009 6:28 am

Thanks guys.

Just at the airport now! Should be a very busy afternoon. I will check in periodically, Internet connection permitting.

Cheers, Jamie.
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Postby Needled » Mon Jul 06, 2009 6:39 am

As usual, I'll be glued to my PC. I hope they're not monitoring my website activity at work!! :lol: Best of luck -- I'll be thinking of you. Please post when you can.
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Postby IHateMS » Mon Jul 06, 2009 7:01 am

Good Luck.
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Postby Arcee » Mon Jul 06, 2009 7:16 am

What an exciting day! Best of luck with it all. Will be awaiting all your posts, and eagerly following you there next week.
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Postby Jamie » Mon Jul 06, 2009 3:44 pm

Its been all go so far!

Mel's had her Doppler, blood work and is now having her MRI and MRV.

We meet Dr Dake tomorrow at 08:00 local time.

While we were waiting for the ultrasound we literally crossed paths with Joan and Jeff, I returned Joan's voicemail and it was them! Mel was then called in so I had to dash!

I can't wait to hear about Jeff's follow up appt!

I sat in on the ultrasound and couldn't really tell anything, i'm afraid anything I did see was just wishful thinking so I'll wait until we've seen Dr Dake.

I'm terrified that Mel will be the first one without this! Can't see me sleepng much tonight!
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Postby mrhodes40 » Mon Jul 06, 2009 3:58 pm

Jamie, good luck to both of you! I was pretty sure I'd not see anything treatable, and look what I ended up with! :lol:

Can't wait for your results, this is a big week! online every minute
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby Jamie » Tue Jul 07, 2009 8:06 am

In the waiting room now!

Dr Dake is looking at the results......

More soon chaps !!!!!
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Postby coach » Tue Jul 07, 2009 8:49 am

High five. Interested to hear the results. Wishing you well.
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Postby Jamie » Tue Jul 07, 2009 9:40 am

Just met with Dr. Dake!

Mel has no blockage.









Just kidding.

Very occluded right jugular at C2. Undersized left jug not sure if congenital or a blockage.

Heading to pre-op now.

Proper update later.
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Postby Needled » Tue Jul 07, 2009 9:56 am

Very funny. That was a good one!!
So, Mel keeps the streak going. Amazing. I'll be thinking of her with her surgery. And, Jamie, no teasing when you let us know how that goes!
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