chrishasms wrote:Hey Lew just our of curiousness...do you still have to cath or is that getting better?
I am still cathing at bedtime only. I really don't HAVE to cath to urinate. I still do most of it on my own. The problem is that I have actually two clinical things going on with my bladder; OAB and Detrussor/sphincter dissynergy. So what happens is I only void a small amount when I go by myself from the dissynergy. So my bladder, unless I cath, always has about 200-300 ml in it directly after I take a pee, so the over active bladder is just ready to fire up at any time! So my urologist warns that he needs me to peel some of that off of there so my kidneys don't get "backed up". Also, because once I get relaxed and it's time for bed, my bladder seems to get tired to and I barely get 50ml out when I get up to go pee in the middle of the night. So I do it at night time so I can get some sleep. I tried not doing it about two months ago and I was up not 20 minutes after I fell asleep.
Dude I have to tell you, I don't mind cathing just once or twice a day at all. It is kind of liberating because if I have to go to Walgreens or something, I'll cath and don't have to worry about having to go RIGHT NOW. It was so much easier when I still had my legs under me. I would go to Lowe's and huge stores like that. I still had the same urgency, but I could actually jog to the bathroom and just get back to shopping for a bit, then do that again if I had to. Now I can't get there quick enough and after a walk to the bathroom in a store, my legs don't want to keep going, so it's liberating in that it gives me more freedom in that regard. He wants me to cath moring, noon and night; 3x/day. I've only been doing it before bed, and will continue to do so until I actually start voiding a little bit more. As long as there is such a large residual amount left in there, it doesn't take long until it's full again. So in order to cut that out, I'll have to start actually emptying my bladder when I take a pee.
To your second post, that is what the first opthamologist I saw thought I had. He called it 'Exercise induced occular Ischemia' because it would only come on when I was playing racquetball and stuff. He didn't know about Uthoff's sign, but the next one did and he is the one who actually said "you might just have MS".