Lew my neuro said almost the same exact thing.
My old neuro had avoided the SP diagnosis though I had been sure for some time, his claim was copaxone was suppressing MRI activity but I was still RR. The new guy was not on that story line at all....
I think us patients cling to this stuff like it is written in stone somewhere, as if by assigning the right names and numbers we can somehow get ahold of it, put it in a box and finally understand the inexplicable robbing of our abilities..........
but what's in a name when they didn't even understand this was a venous issue not an autoimmune one?
RR is all about "active inflammation caused by the immune system"
SP all about "neurodegeneration after the active inflammation is gone, a residual of the autoimmune phase and (according to some) after the inflammatory phase is done"
all of this means nothing if it is CCSVI. I will be interested in how this material comes out with time.
But I hope the phrase SPMS disappears from the lexicon of MS stuuff to know and worry about.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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