I started a blog
WooHoo Loobie! That is so cool someone from TIMS will get to see the inside of Haacke's project. They are watching us too, there are several links to to the TIMS tracker and other posts at
http://www.ms-mri.com/links.php
And now talk of bringing in an IR to fix what they find on the MRIs, this is great news.
Thanks for your blog update, my ass is pretty baked too right now in recovery mode from the stent procedure. I like seeing where I can be in a few months, following in your footsteps.
http://www.ms-mri.com/links.php
And now talk of bringing in an IR to fix what they find on the MRIs, this is great news.
Thanks for your blog update, my ass is pretty baked too right now in recovery mode from the stent procedure. I like seeing where I can be in a few months, following in your footsteps.
Here's the link: http://myhopefuljourneyintoactualmsreco ... gspot.com/
Lew, that was really handy when it was in your signiture line!
Lew, that was really handy when it was in your signiture line!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.
I have sent NHE a private message - also started a thread on the lack of email notifications
Post on the thread you are having a problem so he knows it is more than just Arcee and me.
http://www.thisisms.com/ftopict-8646.html
Sharon
Post on the thread you are having a problem so he knows it is more than just Arcee and me.
http://www.thisisms.com/ftopict-8646.html
Sharon
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I'm not sure. I've only exchanged a few emails with him talking about getting scheduled after I get back next week. I want him to definitely look at my spine. The disparity between Z and D in terms of azygous involvement has bothered me since the word go; especially since most of my 'lesion involvement' has been spinal. I was dx'd with Devic's for the first X years since I had only the triumverate of that disease; ON, bowels, bladder and also 0 brain and only spinal lesions. However, my neuro. at the time changed it as I had 7 cranial lesions pop up during a relapse.
But as far as the SWI from Haacke, I don't know what he wants to look at, but I'm sure it's cranial. I'll ask him about the spine though, but I really don't have any idea until I ask him. I'll be sure to let everyone know once I find out.
But as far as the SWI from Haacke, I don't know what he wants to look at, but I'm sure it's cranial. I'll ask him about the spine though, but I really don't have any idea until I ask him. I'll be sure to let everyone know once I find out.
Lew, as you mentioned the apparent disparity between Z and D concerning the azygous, I was wondering about whether part of the difference could be due to the fact that Z looks at a combination of factors including reflux, while D gathers all of his info from imaging. When Z says that the majority of his patients had azygos involvement of some sort, that doesn't necessarily entail that all of them had visible stenosis there. I'm sure Marie or Joan can clarify if I'm missing something...
Concerning your spinal lesions, I agree this is curious. Apparently there are long re-routes the blood can take once the jugulars are closed. The crucial question is whether it can go as far as the area of your lesions/iron deposits.
Concerning your spinal lesions, I agree this is curious. Apparently there are long re-routes the blood can take once the jugulars are closed. The crucial question is whether it can go as far as the area of your lesions/iron deposits.
Last edited by radeck on Sat Jan 16, 2010 8:27 pm, edited 1 time in total.
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I agree, but I was just going to ask him if the SWI was capable of showing iron build up in the spine like it does the brain. I totally think that's it. After watching a Youtube (I think it was Rici's vid) of the azygous procedure, I couldn't help but notice how small of an area was actually stenosed. Just makes me go hmmmm. I mean the way my diagnosing neuro. explained it to me was that bladder and bowels, and also bilateral leg issues, are the work of spinal lesions and affect everything "below" the lesions, so I know I've go major spinal involvement. But as you point out, that's not necessarily saying it's not due to blood flow out of the jugs.radeck wrote:Lew, as you mentioned the apparent disparity between Z and D concerning the azygous, I was wondering about whether part of the difference could be due to the fact that Z looks at a combination of factors including reflux, while D gathers all of his info from imaging. When Z says that the majority of his patients had azygos involvement of some sort, that doesn't necessarily entail that all of them had visible stenosis there.