This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 5:07 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 49 posts ]  Go to page Previous  1, 2, 3, 4  Next
Author Message
 Post subject:
PostPosted: Thu Jul 09, 2009 5:58 pm 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Island Girl just commented to me that Dr Dake has about had it with the MRV it takes 6,000 images to make a total!! uploading these things to his office computer from the lab so he can see how people are is the bottleneck for him....and if he wants the image turned so he can see another angle it takes another 45 minutes for a techie to do it.. He is actually thinking of going to CT he told IG. total hear say but I am thikning this exchange of informqtion here with one hour uploads sort of tells the tale..... :x

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 09, 2009 7:36 pm 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2684
Location: Sydney, Australia
mrhodes40 wrote:
He is actually thinking of going to CT he told IG. total hear say but I am thikning this exchange of informqtion here with one hour uploads sort of tells the tale..... :x
I have been in email contact with Dr Dake, and he has also strongly recommended I go with a CT instead of the MRV.

My only concern is that the CT images in Zamboni's paper clearly show a Catheter. I am a BIG fan of the fact the MRV is far less invasive. Unless the Catheter is NOT required for a suitable CT?


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 09, 2009 11:58 pm 
Offline
Family Elder
User avatar

Joined: Sat Dec 20, 2008 4:00 pm
Posts: 582
Location: Greece
Hi.

What is shown on Zamboni papers is selective venography, not CT scan. CT is not invasive at all, except the dye injection. But even the catheter does not really hurt that much, as far as I have read. It is a great source of discomfort, though.

sou

_________________
Shortest joke: "We may not be able to cure MS but we can manage its symptoms."


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 2:36 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
Amazingly and on the third attempt the huge file has uploaded to the dropbox server. Now what?! :lol:

I just double clicked on the zipped file and the computer is connecting...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 3:09 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
I had CT scan. You get iodine put into you via an injection. (that makes you feel all flushed and makes you feel as if you need to pee).
The actual CT scan is about 5 minutes long.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 6:40 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 195
Location: Toronto, Canada
gibbledygook wrote:
Amazingly and on the third attempt the huge file has uploaded to the dropbox server. Now what?! :lol:

I just double clicked on the zipped file and the computer is connecting...


Alex, when you log into http://www.getdropbox.com You should see your file listed there.

Edit: fixed instructions
1. Log in
2. Next to your file, there will be a small blue arrow pointing down, click on that and a menu will pop up
3. Select 'Move'
4. Choose the 'Public' folder and click the 'Move file' Button
5. Click on the 'Public' folder to see your file in there
6. Next to your file, there will be a small blue arrow pointing down, click on that and a menu will pop up
7. Select 'copy public link' and it will show you the URL that people can use to download the file


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 7:43 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
Hi,

This file seems determined not to reveal its secrets! I got the file into the public folder but the only options in the blue arrow drop down menu are 1) download zip 2) restore files. I've tried both options and got an error message at the end of option 1 whilst option 2 told me there were no files to restore.
mmmmm

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 7:55 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 195
Location: Toronto, Canada
gibbledygook wrote:
Hi,

This file seems determined not to reveal its secrets! I got the file into the public folder but the only options in the blue arrow drop down menu are 1) download zip 2) restore files. I've tried both options and got an error message at the end of option 1 whilst option 2 told me there were no files to restore.
mmmmm


If you click on the 'Public Folder' you should see your MRV file in there, right? The MRV file should have the option for 'Copy Public Link'

If I click on the blue-arrow menu for the 'Public' folder, that's where I see 'downlload zip' and 'restore files'.

If I click on the Public folder to open it, I can see the files that I moved into that folder.

Let me know if that works


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 7:58 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
Bingo!
http://files.getdropbox.com/u/1507513/MRV2.zip
However, I can't open the file myself...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 8:14 am 
Offline
Family Elder
User avatar

Joined: Thu Sep 23, 2004 3:00 pm
Posts: 2066
Location: USA
Quote:
My only concern is that the CT images in Zamboni's paper clearly show a Catheter. I am a BIG fan of the fact the MRV is far less invasive. Unless the Catheter is NOT required for a suitable CT?


Sou is right CT is just iodine in a IV, Zamboni showed venograms NOT Ct pictures. And LR describes it the way I felt it too...it is fast and easy just an IV

_________________
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 8:27 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 195
Location: Toronto, Canada
gibbledygook wrote:
Bingo!
http://files.getdropbox.com/u/1507513/MRV2.zip
However, I can't open the file myself...


Thanks Alex! I'm downloading it now and going to see if I can make anything out of it :D


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 8:41 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
Good luck Daniel! I believe I did everything as requested by the various different programmes. I'm going to try to commission the radiologist at St George's...as the files are just huge with thousands of images...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 9:15 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 195
Location: Toronto, Canada
gibbledygook wrote:
Good luck Daniel! I believe I did everything as requested by the various different programmes. I'm going to try to commission the radiologist at St George's...as the files are just huge with thousands of images...


Here's what I could find that looked like veins: (picture should be animated)

http://files.getdropbox.com/u/688827/MRV.gif

Is that what you saw when Dr Dake was pointing out the blockage to you?


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 11:35 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 195
Location: Toronto, Canada
Alex, if you put the CD in the drive, then open up 'My Computer', Right-Click on the CD and select 'AutoPlay' from the menu that comes up.. it should start an 'eFilm Lite' application that will show you your MRI images. you can right-click on the left or right image and another menu will pop up allowing you to select one of many different scans that they took.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 10, 2009 11:45 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
Hi,
I've got some DICOM pictures!!!
I went back into DICOM and somehow brought up some scans on a different CD and here are some images which show, I believe, a gadolinium enhanced jugular with stenosis below the ear area.
http://files.getdropbox.com/u/1507513/venous%20occlusion5.JPG
http://files.getdropbox.com/u/1507513/venous%20occlusion3.jpb.JPG

http://files.getdropbox.com/u/1507513/venous%20occlusion2.JPG


http://files.getdropbox.com/u/1507513/venous%20occlusion4.JPG

http://files.getdropbox.com/u/1507513/venous%20occlusion%201.JPG

http://files.getdropbox.com/u/1507513/venousocclusion6.JPG

http://files.getdropbox.com/u/1507513/venousocclusion7.JPG

http://www.daviddarling.info/images/jugular_vein.gif


I remember the scans which Prof Dake showed and they were, I think, of a frontal view with both jugulars visible but I'm not sure my memory serves me correctly on that front. So far I've only seen side views of the body. Will try to keep working through on DICOM...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 49 posts ]  Go to page Previous  1, 2, 3, 4  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. At Stanford

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

mrhodes40

61

6978

Sat May 23, 2009 11:47 am

mrhodes40 View the latest post

There are no new unread posts for this topic. Lew at Stanford 9/15

Loobie

4

1107

Wed Aug 05, 2009 4:19 am

Loobie View the latest post

There are no new unread posts for this topic. Zap Goes to Stanford (Dec)

zap

12

1072

Tue Sep 01, 2009 3:52 pm

CureIous View the latest post

There are no new unread posts for this topic. I am going to Stanford!

CRHInv

14

1715

Sun Oct 18, 2009 12:22 am

ErikaSlovakia View the latest post

There are no new unread posts for this topic. another one for Stanford, and a question

Arcee

6

1385

Wed May 20, 2009 12:12 pm

Sharon View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: