Words cannot begin. Thank you for "taking one for the team" as Marie said. You went beyond the call of duty in getting tested, and I hope and pray you find some answers in all of this. Marie has mentioned gluten ataxia on here before, and how the lesions mimic MS. I wish you continued help in this search, and I can only imagine how frustrated you were not to find something that could be repaired at Stanford. Dr. Dake is a compassionate man, and true healer, and if he comes up with more folks with your profile, I know he will continue to search for answers.
I had one random thought here on vacation...the mind wanders. Could cerebropsinal fluid levels have anything to do with a break in the blood brain barrier...perhaps disc or spinal injury could create some sort of reflux in spinal fluid, leading the villi in the brain to overreact, and open up the BBB? Won't have time to google this idea until I'm home next week...but wanted to throw my random, tennis induced idea out there...like one of my lobs
best to all, and appreciation to you, Island Girl-
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS