Lew I am so glad for you! This is wonderful news; noon and you will have taken your chance that this is the real deal.
I love that you said
Dr. Dake is very down to earth. He doesn't pretend like he knows what you should expect or anything and I think that's great. He's very engaging and is like talking to a buddy. He's obviously very, very intelligent, but he comes off very pragmatic and sensible with his feet planted where the rest of ours are (unlike many doctors I know). He will talk about the things people are seeing relief in straight away, but falls short telling you what you should expect. He says "I just don't know" and he's straight up about how we are simply in uncharted waters
Lew this is the best possible explanation of this great man. If I coulda written it I woulda. We all understand this is new, but some of us will not make the next wave of "possible" and I think he understands this urgency about this disease.
DO get the catheter and explain why you need it overnight or they'll try to get it out the night before so they can see you "up and walking to the bathroom" overnight AND make sure that you can pee on your own which is standard medical practice they do not want you laying in a hotel with a peeing problem that you didn't have before so we NEED to see our patients up and walking it gets their blood moving and is good for people, and if we see they are peeing we are happy........ in general. I was lucky the cath got accidentally left in overnight and I did not have to worry about walking to the bathroom, that fact they had an IV pouring fluid in or that water I drank all night. I feel for ALex, that would have been me if I'd not had the cath overnight.
That having been said Dudes have it easy cause you can also request a urinal.........
And there is such a thing as a "condom cath"; not for in the hospital but for long term use at home or at work. It works the way you think it might and does not go into the bladder itself so preserving some normal function in that it does not drain the bladder constantly and you still "control" the flow as normally. I'm sure people get this, but you guys have much better plumbing than us gals in this convenience angle here. its a thought for future outings/ trips. I have never lived with one being female, if someone does this you might report on how it worked.
Lew good luck and have a fun time watching it all happen in the OR. They are COOL . On me the stents felt sharp for several seconds when they inserted them but it was over fast.... and I had a lot of tingles right while I was on the table that were kind of interesting and my upper back / shoulder was twitching. just how it was in my case, but I found the whole experience not scary and fun. I was so SOOO glad to be there...
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
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