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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby LR1234 » Thu Jul 23, 2009 10:32 am

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Last edited by LR1234 on Tue Mar 06, 2012 8:22 am, edited 1 time in total.
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Postby cheerleader » Thu Jul 23, 2009 11:11 am

Sorry, LR...
this is an ongoing frustration. Jeff's dopplers didn't show anything, either. Only with the MRV could we see the complete closure of his left jug and the occlusion in his right. The doppler operator was sure all was fine, but Dr. Dake saw, once he was inside, the flow was refluxing into Jeff's brain.

How to explain this? We believe the dopplers may not be able to get up high enough to see the reflux into the brain...Jeff's blockage was very, very high in his jugs.

Marie has talked about the problems with doppler operator interpretation on here, as well. Don't stop looking into alternatives (CT scan, etc.) I'm hoping with you and Alex working across the pond, we'll find some doctors who can help.

I'm sorry, L
cheer
Last edited by cheerleader on Thu Jul 23, 2009 1:53 pm, edited 1 time in total.
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby LR1234 » Thu Jul 23, 2009 1:36 pm

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Last edited by LR1234 on Tue Mar 06, 2012 8:22 am, edited 1 time in total.
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Postby cheerleader » Thu Jul 23, 2009 1:45 pm

LR1234 wrote:Thanks Cheer.
I will have to wait and see what the prof says when he discusses with his colleagues. I don't like pain so a venogram is daunting for me but If I have to have it I would rather them do the balloon procedure at the same time if they find stenosis.


A venogram/MRV is a simple dye injection in your arm....no pain. A venogram uses radioactive dye and an x-ray machine, an MRV uses gadolinium and an MRI machine.

It is the balloon/stent procedure which uses a catheter, and goes into the vein thru the groin.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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