This Is MS Multiple Sclerosis Community: Knowledge & Support

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LR - great news from Dr. D...I would contact your specialist and forward Dr. D's info. Your specialist probably doesn't know what/where to look for and hopefully Dr. D's analysis can guide your specialist. If he/she doesn't want to play...get another opinion

Hi.

That's exciting news! I mean that you have found your answers, not happy that you have MS and stenoses. We are going to see many false negatives till our physicians are properly informed.

sou

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."

Well, as you probably read already, my husband was seen by 2 doctors using an echodoppler. One saw nothing unusual, but is that because she was not that familiar with the research and felt the differences to normal scans was just "normal"? The other saw a major problem with the left Jugular and narrowing of the vertebrale veins....azygous issue. He is an expert with dopplers and knows about the ccsvi research. It seems to me that the UK opinion was, " this shouldn't be a problem, so there isn't one"....
The frustrating part is affording to get something done when you don't have the insurance in the USA...the french doctor guessed opinion might improve after the Autumn...I hope so, but we could use the relief now.

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yes nickle....wobblt got the balloon clean up

oops sending PM

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I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
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This is GREAT news LR. I hope Marie's contact comes through and I'm about to pester Dake again for his contacts at St Thomas'...so hopefully someone can help sort out your blockages...

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

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Did Dr Dake identify the Stenosis in the MRV or the CT's?

As for the cost, I would GUESS that when Zamboni releases his procedures, they will be considerably cheaper, and also more easily performed by local practitioners. Remember, its all just a guess.

Another source of doctors, may be attaining a list of doctors that will be attending the Monaco event, or are actually organising the event. I have actually stumbled across someone locally (as in around the corner), who says he is on the organising committee, and was referred to Brainteaser (the source of the stumble) by Zamboni as a possible lead in Australia. Checking if the "committee" involves a doctor in your region may be an option; I haven't even checked if they do publish these details, just a random thought.

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L,

I think it would be interesting to hear what your current doctor has to say about the information from Dr. Dake - why the difference in interpreting the scans.

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I tHink that modern stents are made of titanium alone, because nickel was considered to cause re-stenosis.

sou

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."

Dake uses nickel stents.

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