I just called......

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Thu Jul 23, 2009 3:50 pm

peekaboo wrote:

My last email to/from Dr D there are 25 pioneers and he said there were 3 like me. Azygous and jugs? he did not elaborate.


Holly...
one of the 3 azygos and jugs people (the Blue Plate Specials) lives in my town, and she would love to correspond with you in private. Please PM me your e-mail and I'll introduce you. She is an amazing gal-
The hospital was abuzz when Jeff was up there on Mon....you guys are like rock stars! There hasn't been an influx like this before.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby catfreak » Thu Jul 23, 2009 4:57 pm

So, if I make it to Stanford I will be a pioneer!! :D :D :D :D

All this talk just makes me more excited and filled with awe that I may be a part of something so big.

We all owe Cheer and Marie a hugh debt of gratitude for all the research and work put in to all of this for US!!!

Thank you,

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby catfreak » Sun Jul 26, 2009 8:51 am

Hi all,

I just got an email notification from USPS that my package to DR Dake was delivered yesterday morning. So now I know it's there now I just have to wait on them to review it and call me.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby mrhodes40 » Sun Jul 26, 2009 8:59 am

I am so happy for you! Thanks for the shout out :D
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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