I just called......

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I just called......

Postby catfreak » Tue Jul 14, 2009 1:00 pm

I spoke to Angela, she said Alexandra was gone for the day, so I am to call back tomorrow at 9am there/11am here.

She was very nice. So until tomorrow...

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Advertisement

Postby peekaboo » Tue Jul 14, 2009 1:05 pm

It's a start :)
User avatar
peekaboo
Family Elder
 
Posts: 623
Joined: Sun Feb 08, 2009 3:00 pm
Location: Arizona

Postby Needled » Wed Jul 15, 2009 5:12 am

Way to go, Cat. Regardless of whether you make an apppointment or not, I think you'll satisfy yourself by at least making the call and having more info to decide what you want to do. Please keep us posted.
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 3:00 pm
Location: Connecticut

Postby catfreak » Thu Jul 16, 2009 6:04 pm

I called Alex today and she did not have time to talk and said she would call me back later. Well she called and I could not get my cell phone out of my purse in time to answer. She left a message, which got cut off. I called back and got her answering machine and I left her a message.

It appears we are playing phone tag. I guess it will be Monday before she calls me back since her answering machine said she did not work on Fridays :cry: :cry: :cry:

Lord let me be patient.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Postby catfreak » Wed Jul 22, 2009 8:30 pm

Alex called me on Monday as I was driving to get my Tysabri infusion. So she too some info over the phone and said I need to write a history of all my surgeries and MS problems over the years and fax it to her for Dr Dake to read before he calls me for a phone consult.

Very exciting!!! :D :D :D :D

Now I have a question, I have my MRI's on CD's and he would like to see them. What is the best way to send him these MRI's? Should I download them and email them or just prioity mail them to his office??

Any suggestions???

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Postby Loobie » Thu Jul 23, 2009 5:39 am

I put mine in a UPS padded envelope and off they went!
User avatar
Loobie
Family Elder
 
Posts: 2196
Joined: Mon Sep 11, 2006 2:00 pm
Location: Dayton, Ohio USA

Postby questor » Thu Jul 23, 2009 6:40 am

Cat,
Me too. I made a copy of my MRI CD, wrote my name and the date of the MRI on it, and put it in a large envelope with the other information I was sending, and sent it via USPS.
User avatar
questor
Family Elder
 
Posts: 280
Joined: Mon May 22, 2006 2:00 pm
Location: Northern Calif Monterey Bay Area

Postby mrhodes40 » Thu Jul 23, 2009 9:15 am

Me three. UPS. I copied it for his own files......
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
User avatar
mrhodes40
Family Elder
 
Posts: 2066
Joined: Thu Sep 23, 2004 2:00 pm
Location: USA

Postby catfreak » Thu Jul 23, 2009 10:37 am

Whew!! 8O 8O

I just dropped my priority mail off at the Post Office so Alex should have it next week sometime.

I have butterflies in my stomach just thinking about doing this and having relief from the headache alone!! 8O 8O It is very nerve racking and exciting at the same time!

Cat (I did it!!!)
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Postby zap » Thu Jul 23, 2009 10:47 am

Huh. I called a couple weeks ago, they were going to check on my insurance info and get back to me, but no word back at all yet. Since I am not sure if I shoudl go ahead with it anyway (since I am early on, in good shape, wait-and-learn from the pioneers, etc), I'm not going to push it ... if they don't get back to me, it wasn't meant to be just yet I reckon!
User avatar
zap
Family Elder
 
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm

Postby catfreak » Thu Jul 23, 2009 10:51 am

Zap

Alex said she won't check my insurance until Dake reads all my info and looks at my MRI's I sent. They don't want to talk to Ins unless they believe they can file it to your benefit. (Others correct me it I am wrong on this)

Have you sent in a history and/or MRI's?

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Postby zap » Thu Jul 23, 2009 10:55 am

Nope, they did not ask for MRIs or detailed info, I'd called them to see how my insurance would cover it as a first step, maybe I shorted out the process by doing it that way? Dunno.
User avatar
zap
Family Elder
 
Posts: 326
Joined: Mon Apr 20, 2009 2:00 pm

Postby catfreak » Thu Jul 23, 2009 11:02 am

Zap,

You may want to call back and talk to Alex about doing it differently.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
User avatar
catfreak
Family Elder
 
Posts: 791
Joined: Sun Jun 01, 2008 2:00 pm
Location: Mississippi

Postby Needled » Thu Jul 23, 2009 11:42 am

I just dropped my priority mail off at the Post Office so Alex should have it next week sometime.

Cat, Purr-fect!! Good luck, we'll be waiting to hear what happens next.
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 3:00 pm
Location: Connecticut

Postby peekaboo » Thu Jul 23, 2009 2:34 pm

Zap Wrote:

I called a couple weeks ago, they were going to check on my insurance info and get back to me, but no word back at all yet.


I've been waiting to schedule my follow up visit and they are so swamped. Does the world of academics so real world quick paced etc etc is more foreign to these folks.? I can almost bet that there hasn't been an influx of special patients like us before?

My last email to/from Dr D there are 25 pioneers and he said there were 3 like me. Azygous and jugs? he did not elaborate.
User avatar
peekaboo
Family Elder
 
Posts: 623
Joined: Sun Feb 08, 2009 3:00 pm
Location: Arizona

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service