Prayers for D and some thoughts...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby coach » Sun Jun 20, 2010 2:13 pm

Fantastic news to hear about D. Our sovereign God is still in the miracle business. Does not believing in something make it not true? Just wondering.
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Postby magoo » Mon Jun 21, 2010 11:33 am

A year after treatment is one of those milestones so many have talked about. Well, here she is close to the year mark and the improvements have continued. No placebo here IMO. When can we dismiss placebo? Is there a standard time frame?
Thanks for sharing her good news with us Cheer. Her improvements are a wonderful thing.
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby blossom » Mon Jun 21, 2010 1:17 pm

hi cheerleader, really good to hear about d. you mentioned that she did a ton of physical therapy and aggressive treatment at stanford. can you elaborate on the aggressive treatment? if not ok. i am curious about it all.
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Postby cheerleader » Mon Jun 21, 2010 1:46 pm

She has a few stents, Blossom...not sure how many, but according to her report, her veins were "a mess" and they've remained open.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Daisy3 » Mon Jun 21, 2010 1:53 pm

Hi cheer,

That really is a hopeful and heart warming story. I can't stop smiling!
I guess were all hoping that our loved ones will benefit in a similar fashion.

Did I read somewhere that D is PPMS?

Oh and btw, don't let people bully you off this site,I quite like reading your posts and keeping up to date with the info...lots of people do. So please continue posting!
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Postby coach » Mon Jun 21, 2010 2:07 pm

I second Daisy 3. Do not fear and be of good courage. (Joshua 1:9)
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Postby runforMS » Mon Jun 21, 2010 5:27 pm

This gives us all hope! Thank you for sharing. God be with you
dx 1-6-10
Liberated 6-10, 1-11
In God I trust
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Postby CureIous » Mon Jun 21, 2010 10:19 pm

Sigh. How incredible is that? Any time I see the PP and SP crowd experience improvements like this it just absolutely floors me.

M.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby JoyIsMyStrength » Tue Jun 22, 2010 5:34 am

CureIous wrote:Sigh. How incredible is that? Any time I see the PP and SP crowd experience improvements like this it just absolutely floors me.

M.


Me too. Me next! :-)
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